Transition to adult services for children and young people with palliative care needs : a systematic review
Doug, Manjo, Adi, Y., Williams, Jacky, Paul, Moli, Kelly, Daniel, 1959-, Petchey, Roland and Carter, Yvonne, 1959-2009. (2009) Transition to adult services for children and young people with palliative care needs : a systematic review. Archives of Disease, Vol.96 (No.1). pp. 78-84. ISSN 0003-9888
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Official URL: http://dx.doi.org/10.1136/adc.2009.163931
Objective: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs.
Design: Systematic review
Setting: Child and adult services and interface between healthcare providers.
Patients: Young people aged 13 to 24 years with palliative care conditions in the process of transition.
Main outcome measures: Young people and their families’ experiences of transition, the process of transition between services and its impact on continuity of care, and models of good practice.
Results: 92 studies included. Papers on transition services were of variable quality when applied to palliative care contexts. Most focused on common life threatening and life limiting conditions. No standardised transition programme identified and most guidelines used to develop transition services were not evidence based. Most studies on transition programmes were predominantly condition-specific (e.g. cystic fibrosis, cancer) services. Cystic fibrosis services offered high quality transition with the most robust empirical evaluation. There were differing condition-dependent viewpoints on when transition should occur but agreement on major principles guiding transition
planning and probable barriers. There was evidence of poor continuity between child and adult providers with most originating from within child settings.
Conclusions: Palliative care was not, in itself, a useful concept for locating transition-related evidence. It is not possible to evaluate the merits of the various transition models for palliative care contexts, or their effects on
continuity of care, as there are no long-term outcome data to measure their effectiveness. Use of validated outcome measures would facilitate research and service development.
|Item Type:||Journal Article|
|Subjects:||R Medicine > RA Public aspects of medicine|
|Divisions:||Faculty of Medicine > Warwick Medical School > Mental Health and Wellbeing
Faculty of Medicine > Warwick Medical School
|Library of Congress Subject Headings (LCSH):||Palliative treatment -- Great Britain, Continuum of care -- Great Britain|
|Journal or Publication Title:||Archives of Disease|
|Official Date:||30 November 2009|
|Page Range:||pp. 78-84|
|Access rights to Published version:||Restricted or Subscription Access|
|Funder:||Association of Children’s Hospices|
(1) Freyer DR, Kibrick-Lazea R. In sickness and in health: transition of cancer-related
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