Townend, D., Taylor, M. J., Wright, J. and Wickins-Drazilova, Dita (2009) Privacy interests in biobanking : a preliminary view on a European perspective. In: Principles and practice in biobank governance. Ashgate, Farnham, pp. 137-160. ISBN 9780754678250

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Abstract

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, "Principles and Practice in Biobank Governance" draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Item Type:	Book Item
Divisions:	Faculty of Medicine > Warwick Medical School > Health Sciences Faculty of Medicine > Warwick Medical School
Publisher:	Ashgate
Place of Publication:	Farnham
ISBN:	9780754678250
Book Title:	Principles and practice in biobank governance
Editor:	Kaye, Jane and Stranger, Mark
Date:	2009
Number of Pages:	292
Page Range:	pp. 137-160
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access
URI:	http://wrap.warwick.ac.uk/id/eprint/48691

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