Gadsby, Roger, Snow, R., Daly, A. C, Crowe, S., Matyka, K., Hall, B. and Petrie, J. R.. (2012) Setting research priorities for Type 1 diabetes. Diabetic Medicine, Vol.29 (No.10). pp. 1321-1326. ISSN 0742-3071

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Abstract

Aims  Research priorities are often set by academic researchers or the pharmaceutical industry. The interests of patients, carers and clinicians may therefore be overlooked and research questions that matter may be neglected. The aims of this study were to collect uncertainties about the treatment of Type 1 diabetes from patients, carers and health professionals, and to collate and prioritize these uncertainties to develop a top 10 list of research priorities, using a structured priority-setting partnership of patients, carers, health professionals and diabetes organizations, as described by the James Lind Alliance. Methods  A partnership of interested organizations was set up, and from this a steering committee of 10 individuals was formed. An online and paper survey was used to identify uncertainties. These were collated, and the steering group carried out an interim priority-setting exercise with partner organizations. This group of uncertainties was then voted on to give a smaller list that went forward to the final priority-setting workshop. At this meeting, a final list of the top 10 research priorities was agreed. Results  An initial 1141 uncertainties were described. These were reduced to 88 indicative questions, 47 of which went out for voting. Twenty-four were then taken forward to a final priority-setting workshop. This workshop resulted in a list of top 10 research priorities in Type 1 diabetes. Conclusion  We have shown that it is possible using the James Lind Alliance process to develop an agreed top 10 list of research priorities for Type 1 diabetes from health professionals, patients and carers.

Item Type:	Journal Article
Divisions:	Faculty of Medicine > Warwick Medical School > Education Development and Research Faculty of Medicine > Warwick Medical School > Metabolic and Vascular Health Faculty of Medicine > Warwick Medical School
Journal or Publication Title:	Diabetic Medicine
Publisher:	Blackwell
ISSN:	0742-3071
Date:	October 2012
Volume:	Vol.29
Number:	No.10
Page Range:	pp. 1321-1326
Identification Number:	10.1111/j.1464-5491.2012.03755.x
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access
URI:	http://wrap.warwick.ac.uk/id/eprint/50255

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