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Self and parent perspectives on health-related quality of life of adolescents born very preterm
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Wolke, Dieter, Chernova, Julia, Eryigit-Madzwamuse, Suna, Samara, Muthanna, Zwierzynska, Karolina and Petrou, Stavros (2013) Self and parent perspectives on health-related quality of life of adolescents born very preterm. The Journal of Pediatrics, Volume 163 (Number 4 ). 1020-1026e2. doi:10.1016/j.jpeds.2013.04.030 ISSN 0022-3476.
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Official URL: http://dx.doi.org/10.1016/j.jpeds.2013.04.030
Abstract
Objectives
To test whether health-related quality of life (HRQL) based on societal standards differs between very low birth weight/very preterm (VLBW/VP) and full-term (FT) adolescents using self and parent proxy reports. Also, to examine whether self and parent reported HRQL is explained by indicators of objective functioning in childhood.
Study design
This prospective cohort study followed 260 VLBW/VP adolescents, 12 VLBW/VP adolescents with disability, and 282 FT adolescents. Objective functioning was assessed at 8.5 years; HRQL was assessed at 13 years with the Health Utilities Index Mark 3 (HUI3).
Results
Adolescents reported more functional impairment than their parents especially in the psychological aspects of health. The mean difference in HUI3 multi-attribute utility scores between FT and VLBW/VP adolescents was small (parents: 0.91 [95% CI, 0.90, 0.92] vs 0.88 [95% CI, 0.86, 0.90]; adolescents: 0.87 [95% CI, 0.85, 0.89] vs 0.84 [95% CI, 0.82, 0.86]), but high for VLBW/VP adolescents with disabilities (0.18, 95% CI, −0.04, 0.40). Objective function did not predict HRQL in FT adolescents but contributed to prediction of HRQL in VLBW/VP adolescents without disabilities. Different indicators of objective functioning were important for adolescent vs parent reports. More variation in HUI3 scores was explained by objective function in VLBW/VP parent reports compared with adolescent reports (25% vs 18%).
Conclusions
VLBW/VP adolescents reported poorer HRQL than their FT peers in early adolescence. Improvement in HRQL as VLBW/VP children grow up is, at least partly, explained by exclusion of the most disabled in self reports by VLBW/VP adolescents and the use of different reference points by adolescents compared with parents.
Item Type: | Journal Article | ||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing Faculty of Science, Engineering and Medicine > Science > Psychology Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | The Journal of Pediatrics | ||||
Publisher: | Mosby, Inc. | ||||
ISSN: | 0022-3476 | ||||
Official Date: | October 2013 | ||||
Dates: |
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Volume: | Volume 163 | ||||
Number: | Number 4 | ||||
Page Range: | 1020-1026e2 | ||||
DOI: | 10.1016/j.jpeds.2013.04.030 | ||||
Status: | Peer Reviewed | ||||
Publication Status: | Published | ||||
Access rights to Published version: | Restricted or Subscription Access |
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