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Parental bereavement and the loss of a child with intellectual disabilities : A review of the literature

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Reilly, Deirdre E., Hastings, Richard P., Vaughan, Frances L., Huws, Jaci C. and Taylor, Steven J. (2008) Parental bereavement and the loss of a child with intellectual disabilities : A review of the literature. Intellectual and Developmental Disabilities, Volume 46 (Number 1). pp. 27-43. doi:10.1352/0047-6765(2008)46[27:PBATLO]2.0.CO;2

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Official URL: http://dx.doi.org/10.1352/0047-6765(2008)46[27:PBA...

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Abstract

Inequalities in health care and other risk factors mean that children with intellectual disabilities are more likely to predecease their parents. Research on the effects on family members when a child with intellectual disability dies is sparse. In the present review, the authors describe 5 studies of bereavement in intellectual disability and then turn to general parental bereavement research to inform the field of intellectual disability. Questions for future research and some implications for services and professionals are discussed. In particular, professionals should be aware of dissatisfaction with care pre-loss, disenfranchised grief, and post-loss support needs of family members.

Item Type: Journal Article
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Journal or Publication Title: Intellectual and Developmental Disabilities
Publisher: American Association on Intellectual and Developmental Disabilities
ISSN: 1934-9491
Official Date: February 2008
Dates:
DateEvent
February 2008Published
Volume: Volume 46
Number: Number 1
Page Range: pp. 27-43
DOI: 10.1352/0047-6765(2008)46[27:PBATLO]2.0.CO;2
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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