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Development of the functional vision questionnaire for children and young people with visual impairment

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Tadić, Valerija, Cooper, Andrew, Cumberland, Phillippa, Hundt, Gillian and Rahi, Jugnoo S. (2013) Development of the functional vision questionnaire for children and young people with visual impairment. Ophthalmology, Volume 120 (Number 12). pp. 2725-2732. doi:10.1016/j.ophtha.2013.07.055 ISSN 0161-6420.

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Official URL: http://dx.doi.org/10.1016/j.ophtha.2013.07.055

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Abstract

Objective
To develop a novel age-appropriate measure of functional vision (FV) for self-reporting by visually impaired (VI) children and young people.

Design
Questionnaire development.

Participants
A representative patient sample of VI children and young people aged 10 to 15 years, visual acuity of the logarithm of the minimum angle of resolution (logMAR) worse than 0.48, and a school-based (nonrandom) expert group sample of VI students aged 12 to 17 years.

Methods
A total of 32 qualitative semistructured interviews supplemented by narrative feedback from 15 eligible VI children and young people were used to generate draft instrument items. Seventeen VI students were consulted individually on item relevance and comprehensibility, instrument instructions, format, and administration methods. The resulting draft instrument was piloted with 101 VI children and young people comprising a nationally representative sample, drawn from 21 hospitals in the United Kingdom. Initial item reduction was informed by presence of missing data and individual item response pattern. Exploratory factor analysis (FA) and parallel analysis (PA), and Rasch analysis (RA) were applied to test the instrument's psychometric properties.

Main Outcome Measures
Psychometric indices and validity assessment of the Functional Vision Questionnaire for Children and Young People (FVQ_CYP).

Results
A total of 712 qualitative statements became a 56-item draft scale, capturing the level of difficulty in performing vision-dependent activities. After piloting, items were removed iteratively as follows: 11 for high percentage of missing data, 4 for skewness, and 1 for inadequate item infit and outfit values in RA, 3 having shown differential item functioning across age groups and 1 across gender in RA. The remaining 36 items showed item fit values within acceptable limits, good measurement precision and targeting, and ordered response categories. The reduced scale has a clear unidimensional structure, with all items having a high factor loading on the single factor in FA and PA. The summary scores correlated significantly with visual acuity.

Conclusions
We have developed a novel, psychometrically robust self-report questionnaire for children and young people—the FVQ_CYP—that captures the functional impact of visual disability from their perspective. The 36-item, 4-point unidimensional scale has potential as a complementary adjunct to objective clinical assessments in routine pediatric ophthalmology practice and in research.

Item Type: Journal Article
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RE Ophthalmology
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
Library of Congress Subject Headings (LCSH): Children with visual disabilities, Teenagers with visual disabilities, Questionnaires, Visual acuity
Journal or Publication Title: Ophthalmology
Publisher: Elsevier Inc.
ISSN: 0161-6420
Official Date: 2013
Dates:
DateEvent
2013Published
Volume: Volume 120
Number: Number 12
Page Range: pp. 2725-2732
DOI: 10.1016/j.ophtha.2013.07.055
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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