Skip to content Skip to navigation
University of Warwick
  • Study
  • |
  • Research
  • |
  • Business
  • |
  • Alumni
  • |
  • News
  • |
  • About

University of Warwick
Publications service & WRAP

Highlight your research

  • WRAP
    • Home
    • Search WRAP
    • Browse by Warwick Author
    • Browse WRAP by Year
    • Browse WRAP by Subject
    • Browse WRAP by Department
    • Browse WRAP by Funder
    • Browse Theses by Department
  • Publications Service
    • Home
    • Search Publications Service
    • Browse by Warwick Author
    • Browse Publications service by Year
    • Browse Publications service by Subject
    • Browse Publications service by Department
    • Browse Publications service by Funder
  • Help & Advice
University of Warwick

The Library

  • Login
  • Admin

The real-world problem of care coordination : a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers

Tools
- Tools
+ Tools

Daveson, Barbara A., Harding, Richard, Shipman, Cathy, Mason, Bruce L., Epiphaniou, Eleni, Higginson, Irene J., Ellis-Smith, Clare, Henson, Lesley, Munday, Dan, Nanton, Veronica, Dale, Jeremy, Boyd, Kirsty, Worth, Allison, Barclay, Stephen, Donaldson, Anne and Murray, Scott A. (2014) The real-world problem of care coordination : a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers. PLoS One, Volume 9 (Number 5). Article number e95523. doi:10.1371/journal.pone.0095523 ISSN 1932-6203.

[img]
Preview
PDF
WRAP_journal.pone.0095523.pdf - Published Version - Requires a PDF viewer.

Download (1517Kb) | Preview
Official URL: http://dx.doi.org/10.1371/journal.pone.0095523

Request Changes to record.

Abstract

Objectives

To develop a model of care coordination for patients living with advanced progressive illness and their unpaid caregivers, and to understand their perspective regarding care coordination.

Design

A prospective longitudinal, multi-perspective qualitative study involving a case-study approach.

Methods

Serial in-depth interviews were conducted, transcribed verbatim and then analyzed through open and axial coding in order to construct categories for three cases (sites). This was followed by continued thematic analysis to identify underlying conceptual coherence across all cases in order to produce one coherent care coordination model.

Participants

Fifty-six purposively sampled patients and 27 case-linked unpaid caregivers.

Settings

Three cases from contrasting primary, secondary and tertiary settings within Britain.

Results

Coordination is a deliberate cross-cutting action that involves high-quality, caring and well-informed staff, patients and unpaid caregivers who must work in partnership together across health and social care settings. For coordination to occur, it must be adequately resourced with efficient systems and services that communicate. Patients and unpaid caregivers contribute substantially to the coordination of their care, which is sometimes volunteered at a personal cost to them. Coordination is facilitated through flexible and patient-centered care, characterized by accurate and timely information communicated in a way that considers patients’ and caregivers’ needs, preferences, circumstances and abilities.

Conclusions

Within the midst of advanced progressive illness, coordination is a shared and complex intervention involving relational, structural and information components. Our study is one of the first to extensively examine patients’ and caregivers’ views about coordination, thus aiding conceptual fidelity. These findings can be used to help avoid oversimplifying a real-world problem, such as care coordination. Avoiding oversimplification can help with the development, evaluation and implementation of real-world coordination interventions for patients and their unpaid caregivers in the future.

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Palliative treatment, Caregivers
Journal or Publication Title: PLoS One
Publisher: Public Library of Science
ISSN: 1932-6203
Official Date: 2 May 2014
Dates:
DateEvent
2 May 2014Published
2 January 2014Available
26 March 2013Accepted
Volume: Volume 9
Number: Number 5
Article Number: Article number e95523
DOI: 10.1371/journal.pone.0095523
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access (Creative Commons)
Date of first compliant deposit: 27 December 2015
Date of first compliant Open Access: 27 December 2015
Funder: National Institute for Health Research (Great Britain) (NIHR), Atlantic Philanthropies (Organization), Cicely Saunders International
Grant number: 08/1813/258 (NIHR)

Request changes or add full text files to a record

Repository staff actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics

twitter

Email us: wrap@warwick.ac.uk
Contact Details
About Us