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‘He's hard work, but he's worth it’. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour : a meta-synthesis of qualitative research

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Griffith, G. M. and Hastings, Richard P. (2013) ‘He's hard work, but he's worth it’. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour : a meta-synthesis of qualitative research. Journal of Applied Research in Intellectual Disabilities, Volume 27 (Number 5). pp. 401-419. doi:10.1111/jar.12073

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Official URL: http://dx.doi.org/10.1111/jar.12073

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Abstract

Background
The purpose of this review is to synthesize the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services.

Materials and Methods
A thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis.

Results
Five primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes.

Conclusions
Carers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour.

Item Type: Journal Article
Divisions: Faculty of Science > Psychology
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1468-3148
Official Date: 15 September 2013
Dates:
DateEvent
15 September 2013Published
15 September 2013Available
16 August 2013Accepted
Volume: Volume 27
Number: Number 5
Page Range: pp. 401-419
DOI: 10.1111/jar.12073
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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