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A review of the quality of care following prolonged seizures in 1–18 year olds with epilepsies
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Hunter, Lindsey, Sidebotham, Peter, Appleton, Richard and Dunkley, Colin (2015) A review of the quality of care following prolonged seizures in 1–18 year olds with epilepsies. Seizure - European Journal of Epilepsy, Volume 24 . pp. 88-92. doi:10.1016/j.seizure.2014.09.001
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Official URL: http://dx.doi.org/10.1016/j.seizure.2014.09.001
Abstract
Objective: To review the quality of care of children and young people with epilepsies who, following a prolonged seizure, received high-dependency or intensive care. To identify and learn from clinical, organisational, management or personal issues that contributed to these admissions, in order to inform practice and improve clinical services for children across the UK.
Design: Notifications collected from consultant paediatricians over 10 months. For all eligible cases a clinical questionnaire was sent to the notifying clinician. A sample of these cases was selected for a detailed case note review. Case notes were reviewed by paediatrician-nurse pairs using a purpose-built assessment tool derived from national guidelines.
Setting: England, Wales, Scotland and Northern Ireland.
Patients: Children between 1 and 18 years with a prior diagnosis of epilepsy who received high-dependency or intensive care following a prolonged seizure.
Results: Data were collected from 135 clinical questionnaires, and 36 sets of case notes were reviewed. Findings were compared to national standards of care and emerging themes identified.
There was evidence of good epilepsy management in many cases. In some cases there was evidence of a lack of clear emergency care plans, of delays in administration of emergency medication, and of deviation from established national guidelines.
Conclusion: The findings of this review suggest there have been improvements in the care of children and young people with epilepsies presenting with prolonged seizures compared to previous studies. Nevertheless, further improvements are needed, particularly in communication with families and prompt administration of emergency medication.
| Item Type: | Journal Article | ||||||||||
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| Subjects: | R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services | ||||||||||
| Divisions: | Faculty of Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing Faculty of Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Epileptic children -- Care, Epilepsy in children -- Treatment, Pediatric emergencies | ||||||||||
| Journal or Publication Title: | Seizure - European Journal of Epilepsy | ||||||||||
| Publisher: | Elsevier Ltd | ||||||||||
| ISSN: | 1059-1311 | ||||||||||
| Official Date: | January 2015 | ||||||||||
| Dates: |
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| Volume: | Volume 24 | ||||||||||
| Page Range: | pp. 88-92 | ||||||||||
| DOI: | 10.1016/j.seizure.2014.09.001 | ||||||||||
| Status: | Peer Reviewed | ||||||||||
| Publication Status: | Published | ||||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||||
| Funder: | Health Quality Improvement Partnership |
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