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A review of the quality of care following prolonged seizures in 1–18 year olds with epilepsies

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Hunter, Lindsey, Sidebotham, Peter, Appleton, Richard and Dunkley, Colin (2015) A review of the quality of care following prolonged seizures in 1–18 year olds with epilepsies. Seizure - European Journal of Epilepsy, Volume 24 . pp. 88-92. doi:10.1016/j.seizure.2014.09.001 ISSN 1059-1311.

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Official URL: http://dx.doi.org/10.1016/j.seizure.2014.09.001

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Abstract

Objective: To review the quality of care of children and young people with epilepsies who, following a prolonged seizure, received high-dependency or intensive care. To identify and learn from clinical, organisational, management or personal issues that contributed to these admissions, in order to inform practice and improve clinical services for children across the UK.

Design: Notifications collected from consultant paediatricians over 10 months. For all eligible cases a clinical questionnaire was sent to the notifying clinician. A sample of these cases was selected for a detailed case note review. Case notes were reviewed by paediatrician-nurse pairs using a purpose-built assessment tool derived from national guidelines.

Setting: England, Wales, Scotland and Northern Ireland.

Patients: Children between 1 and 18 years with a prior diagnosis of epilepsy who received high-dependency or intensive care following a prolonged seizure.

Results: Data were collected from 135 clinical questionnaires, and 36 sets of case notes were reviewed. Findings were compared to national standards of care and emerging themes identified.

There was evidence of good epilepsy management in many cases. In some cases there was evidence of a lack of clear emergency care plans, of delays in administration of emergency medication, and of deviation from established national guidelines.

Conclusion: The findings of this review suggest there have been improvements in the care of children and young people with epilepsies presenting with prolonged seizures compared to previous studies. Nevertheless, further improvements are needed, particularly in communication with families and prompt administration of emergency medication.

Item Type: Journal Article
Subjects: R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Epileptic children -- Care, Epilepsy in children -- Treatment, Pediatric emergencies
Journal or Publication Title: Seizure - European Journal of Epilepsy
Publisher: Elsevier Ltd
ISSN: 1059-1311
Official Date: January 2015
Dates:
DateEvent
January 2015Published
19 September 2014Available
4 September 2014Accepted
6 January 2014Submitted
Volume: Volume 24
Page Range: pp. 88-92
DOI: 10.1016/j.seizure.2014.09.001
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Funder: Health Quality Improvement Partnership

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