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Pathways to diagnosis : a qualitative study of the experiences and emotional reactions of parents of children diagnosed with type 1 diabetes
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Rankin, David, Harden, Jeni, Waugh, Norman, Noyes, Kathryn, Barnard, Katharine D, Stephen, John, Robertson, Kenneth J, Bath, Louise, Robertson, Linda and Lawton, Julia (2015) Pathways to diagnosis : a qualitative study of the experiences and emotional reactions of parents of children diagnosed with type 1 diabetes. Pediatric Diabetes, Volume 15 (Number 8). pp. 591-598. doi:10.1111/pedi.12124 ISSN 1399-543X.
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Official URL: http://dx.doi.org/10.1111/pedi.12124
Abstract
OBJECTIVE:
The aim of this study was to explore from parents' perspectives the circumstances and events which led to their child being diagnosed with type 1 diabetes (T1D). The objective was to understand reasons for delays in seeking treatment and parents' emotional reactions to diagnosis so others can be better informed and supported in future.
METHODS:
In-depth interviews with 54 parents of children (aged ≤12 yr) with T1D were conducted. Data analysis used an inductive, thematic approach.
RESULTS:
Parents described a 'prompt' and a 'delayed' pathway to their child being diagnosed. Parents who considered the diagnosis to be 'prompt' reported how they, or other people, had recognized their child had developed symptoms of T1D which resulted in a rapid presentation to health care professionals. In contrast, parents who perceived their child's diagnosis to be 'delayed' did not recognize signs of T1D and attributed their child's deteriorating health to other conditions, being out of routines and/or their stage of development. These parents often only sought medical help when symptoms became extreme. All parents were distressed by their child's diagnosis; however, parents in the 'delayed' pathway expressed unresolved feelings of guilt, particularly when their child was diagnosed with diabetic ketoacidosis.
DISCUSSION:
Parents' and other people's knowledge about T1D can affect the duration between onset of their child's symptoms and diagnosis. Campaigns to raise awareness should ensure that parents are made aware of symptoms and that T1D can develop during childhood. Health care professionals could discuss with parents the events preceding their child's diagnosis to better determine their emotional support need
Item Type: | Journal Article | ||||||||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Population, Evidence & Technologies (PET) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | Pediatric Diabetes | ||||||||||
Publisher: | Wiley-Blackwell Publishing, Inc. | ||||||||||
ISSN: | 1399-543X | ||||||||||
Official Date: | December 2015 | ||||||||||
Dates: |
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Volume: | Volume 15 | ||||||||||
Number: | Number 8 | ||||||||||
Page Range: | pp. 591-598 | ||||||||||
DOI: | 10.1111/pedi.12124 | ||||||||||
Status: | Peer Reviewed | ||||||||||
Publication Status: | Published | ||||||||||
Access rights to Published version: | Restricted or Subscription Access |
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