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The impact of online social networks on health and health systems : a scoping review and case studies

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Griffiths, Frances, Doberman, Tim, Cave, Jonathan A. K., Thorogood, Margaret, Johnson, Samantha Ann, Salamatian, Kave, Olive, Xavier Gomez and Goudge, Jane (2015) The impact of online social networks on health and health systems : a scoping review and case studies. Policy & Internet, 7 (4). pp. 473-496. doi:10.1002/poi3.97 ISSN 1944-2866.

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Official URL: http://doi.org/10.1002/poi3.97

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Abstract

Interaction through online social networks potentially results in the contestation of prevailing ideas about health and health care, and to mass protest where health is put at risk or health care provision is wanting. Through a review of the academic literature and case studies of four social networking health sites (PatientsLikeMe, Mumsnet, Treatment Action Campaign, and My Pro Ana), we establish the extent to which this phenomenon is documented, seek evidence of the prevalence and character of health-related networks, and explore their structure, function, participants, and impact, seeking to understand how they came into being and how they sustain themselves. Results indicate mass protest is not arising from these established health-related networking platforms. There is evidence of changes in policy following campaigning activity prompted by experiences shared through social networking such as improved National Health Service care for miscarriage (a Mumsnet campaign). Platform owners and managers have considerable power to shape these campaigns. Social networking is also influencing health policy indirectly through increasing awareness and so demand for health care. Transient social networking about health on platforms such as Twitter were not included as case studies but may be where the most radical or destabilizing influence on health care policy might arise

Item Type: Journal Article
Subjects: R Medicine > RA Public aspects of medicine
Divisions: Faculty of Social Sciences > Economics
Administration > Information and Digital Group > Library
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH)
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Statistics and Epidemiology
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Online social networks, Medical policy
Journal or Publication Title: Policy & Internet
Publisher: John Wiley & Sons, Inc.
ISSN: 1944-2866
Official Date: December 2015
Dates:
DateEvent
December 2015Published
1 September 2015Available
1 May 2015Accepted
14 October 2014Submitted
Volume: 7
Number: 4
Number of Pages: 17
Page Range: pp. 473-496
DOI: 10.1002/poi3.97
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access (Creative Commons)
Funder: Wellcome Trust (London, England), Network of Excellence in Internet Science (EINS)
Grant number: 104333/Z/14/Z (WT) ; 288021 (EINS)
Conference Paper Type: Paper
Title of Event: Internet, Politics, and Policy academic conference 2014
Type of Event: Conference
Date(s) of Event: 25-26 Sep 2014

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