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Loss and rebuilding : a qualitative study of late diagnosis of cleft palate
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Tierney, Stephanie, Blackhurst, Maria, Scahill, Rachael and Callery, Peter (2015) Loss and rebuilding : a qualitative study of late diagnosis of cleft palate. Journal for Specialists in Pediatric Nursing, 20 (4). pp. 280-289. doi:10.1111/jspn.12125 ISSN 1539-0136 .
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Official URL: http://dx.doi.org/10.1111/jspn.12125
Abstract
Purpose. To explore the experiences of parents whose child received a late diagnosis of cleft palate (>24 hr after birth).
Design and Methods. Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi-structured interview. Framework analysis was applied to data.
Results. Loss and rebuilding was an overarching concept—from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child’s long-term condition.
Practice implications. Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing and supporting.
Item Type: | Journal Article | ||||||||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | Journal for Specialists in Pediatric Nursing | ||||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||||
ISSN: | 1539-0136 | ||||||||||
Official Date: | October 2015 | ||||||||||
Dates: |
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Volume: | 20 | ||||||||||
Number: | 4 | ||||||||||
Page Range: | pp. 280-289 | ||||||||||
DOI: | 10.1111/jspn.12125 | ||||||||||
Status: | Peer Reviewed | ||||||||||
Publication Status: | Published | ||||||||||
Access rights to Published version: | Restricted or Subscription Access |
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