Tierney, Stephanie, Blackhurst, Maria, Scahill, Rachael and Callery, Peter (2015) Loss and rebuilding : a qualitative study of late diagnosis of cleft palate. Journal for Specialists in Pediatric Nursing, 20 (4). pp. 280-289. doi:10.1111/jspn.12125

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Abstract

Purpose. To explore the experiences of parents whose child received a late diagnosis of cleft palate (>24 hr after birth).
Design and Methods. Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi-structured interview. Framework analysis was applied to data.
Results. Loss and rebuilding was an overarching concept—from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child’s long-term condition.
Practice implications. Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing and supporting.

Item Type:	Journal Article
Divisions:	Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Journal or Publication Title:	Journal for Specialists in Pediatric Nursing
Publisher:	Wiley-Blackwell Publishing Ltd.
ISSN:	1539-0136
Official Date:	October 2015
Dates:	Date Event October 2015 Published 7 July 2015 Available 29 May 2015 Accepted 5 December 2014 Submitted
Volume:	20
Number:	4
Page Range:	pp. 280-289
DOI:	10.1111/jspn.12125
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access

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