Griffiths, Frances, Atherton, Helen, Barker, Jack R., Cave, Jonathan A. K., Dennick, Kathryn, Dowdall, Peter, Fraser, Joe, Huxley, Caroline J., Sung -Wook, Kim, Madan, Jason, Matharu, Harjit, Musumadi, Luhanga, Palmer, Tom M., Paul, Moli, Sankaranarayanan, Sailesh, Slowther, Anne, Sujan, Mark-Alexander, Sutcliffe, Paul and Sturt, Jackie (2015) Improving health outcome for young people with long term conditions : the role of digital communication in current and future patient-clinician communication for NHS providers of specialist clinical services for young people receiving specialist clinical services - LYNC study protocol. Digital Health . pp. 1-13. doi:10.1177/2055207615593698 ISSN 2055-2076.

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Abstract

Background: Young people living with long term conditions are vulnerable to health service disengagement. This endangers their long term health. Studies report requests for digital forms of communication - email, text, social media - with their health care team. Digital clinical communication is troublesome for the UK NHS.
Aim: To present the research protocol for evaluating the impacts and outcomes of digital clinical communications for young people living with long term conditions and provide critical analysis of their use, monitoring and evaluation by NHS providers.
Methods: The research involves: 1) Patient and Public Involvement activities with 16-24 year olds with and without long term health conditions; 2) six literature reviews; 3) case studies – the main empirical part of the study – and 4) synthesis and a consensus meeting. Case studies use a mixed methods design. Interviews and non-participant observation of practitioners and patients communicating in up to 20 specialist clinical settings will be combined with data, aggregated at the case level (non-identifiable patient data), on a range of clinical outcomes meaningful within the case and across cases. We will describe the use of digital clinical communication from the perspective of patients, clinical staff, support staff and managers, interviewing up to 15 young people and 15 staff per case study. Outcome data includes emergency admissions, A&E attendance and DNA rates. Case studies will be analysed to understand impacts of digital clinical communication on patient health outcomes, health care costs and consumption, ethics and patient safety.

Item Type:	Journal Article
Divisions:	Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Clinical Trials Unit Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Population, Evidence & Technologies (PET) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Journal or Publication Title:	Digital Health
Publisher:	SAGE Publications Ltd.
ISSN:	2055-2076
Official Date:	June 2015
Dates:	Date Event June 2015 Available
Page Range:	pp. 1-13
DOI:	10.1177/2055207615593698
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Open Access (Creative Commons)
Date of first compliant deposit:	26 February 2016
Date of first compliant Open Access:	26 February 2016
Related URLs:	Publisher Publisher

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