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A meta-ethnography of patients' experiences of chronic pelvic pain : struggling to construct chronic pelvic pain as 'real'
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Toye, Francine, Seers, Kate and Barker, Karen, MSc (2014) A meta-ethnography of patients' experiences of chronic pelvic pain : struggling to construct chronic pelvic pain as 'real'. Journal of Advanced Nursing, 70 (12). pp. 2713-2727. doi:10.1111/jan.12485 ISSN 0309-2402.
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Official URL: https://doi.org/10.1111/jan.12485
Abstract
AIM:
To review systematically and integrate the findings of qualitative research to increase our understanding of patients' experiences of chronic pelvic pain.
BACKGROUND:
Chronic pelvic pain is a prevalent pain condition with a high disease burden for men and women. Its multifactorial nature makes it challenging for clinicians and patients.
DESIGN:
Synthesis of qualitative research using meta-ethnography.
DATA SOURCES:
Five electronic bibliographic databases from inception until March 2014 supplemented by citation tracking. Of 488 papers retrieved, 32 met the review aim.
REVIEW METHODS:
Central to meta-ethnography is identifying 'concepts' and developing a conceptual model through constant comparison. Concepts are the primary data of meta-ethnography. Two team members read each paper to identify and collaboratively describe the concepts. We next compared concepts across studies and organized them into categories with shared meaning. Finally, we developed a conceptual model, or line of argument, to explain the conceptual categories.
RESULTS:
Our findings incorporate the following categories into a conceptual model: relentless and overwhelming pain; threat to self; unpredictability, struggle to construct pain as normal or pathological; a culture of secrecy; validation by diagnosis; ambiguous experience of health care; elevation of experiential knowledge and embodiment of knowledge through a community.
CONCLUSION:
The innovation of our model is to demonstrate, for the first time, the central struggle to construct 'pathological' vs. 'normal' chronic pelvic pain, a struggle that is exacerbated by a culture of secrecy. More research is needed to explore men's experience and to compare this with women's experience.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Subjects: | R Medicine > RG Gynecology and obstetrics | ||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Pelvic pain | ||||||||
| Journal or Publication Title: | Journal of Advanced Nursing | ||||||||
| Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||
| ISSN: | 0309-2402 | ||||||||
| Official Date: | December 2014 | ||||||||
| Dates: |
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| Volume: | 70 | ||||||||
| Number: | 12 | ||||||||
| Page Range: | pp. 2713-2727 | ||||||||
| DOI: | 10.1111/jan.12485 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||
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