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Challenges for providing genetic counselling in Colombian genetic clinics : the viewpoint of the physicians providing genetic consultations

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Rodas-Pérez, Clemencia, Clarke, Angus, Powell, John and Thorogood, Margaret (2015) Challenges for providing genetic counselling in Colombian genetic clinics : the viewpoint of the physicians providing genetic consultations. Journal of Community Genetics, 6 (3). pp. 301-311. doi:10.1007/s12687-015-0237-1 ISSN 1868-310X.

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Official URL: http://dx.doi.org/10.1007/s12687-015-0237-1

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Abstract

This study explores the provision of clinical genetic services in Colombia, in order to promote improvements in these services. We carried out semi-structured interviews with 20 doctors working in genetic clinics, and we report the challenges in providing genetic counselling that they have identified. Education and training in genetics in Colombian medical schools were described as inadequate, and interviewees found that many of their medical colleagues knew too little to be able to refer appropriately to a genetics service. The doctors interviewed recognised their own limitations, including lack of knowledge, absence of training in communication skills and the strong influence of religious beliefs on the consultations of some colleagues. There may also be communication problems during the consultation: patients may fail to understand the explanations given or to accept the incurable nature of genetic conditions. There are also problems with access, because genetic services are not covered by the health insurance system in Colombia. More training in genetics is required at medical schools in Colombia, at the undergraduate and postgraduate level. There was a consensus that most medical specialities are limited in their knowledge, awareness and understanding of genetics. Furthermore, many medical geneticists did not believe that other health professionals should work as genetic counsellors. These findings may assist in the development of improved genetic counselling services in Colombia and in the establishment of an enhanced academic curriculum of basic and clinical genetics at Colombian universities.

Item Type: Journal Article
Subjects: Q Science > QH Natural history > QH426 Genetics
R Medicine > RC Internal medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > ( - July 2016) Medical Education Hub
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Statistics and Epidemiology
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Physicians -- Training of -- Columbia, Genetic disorders -- Treatment , Genetic disorders -- Religious aspects, Patients -- Medical examinations, Clinics , Physicians -- Columbia -- Interviews
Journal or Publication Title: Journal of Community Genetics
Publisher: Springer
ISSN: 1868-310X
Official Date: July 2015
Dates:
DateEvent
July 2015Published
19 June 2015Available
Volume: 6
Number: 3
Page Range: pp. 301-311
DOI: 10.1007/s12687-015-0237-1
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Description:

This article is part of the special issue on “Genetics and Ethics in Latin America”

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