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Layers of listening : qualitative analysis of the impact of early intervention services for first-episode psychosis on carers' experiences

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Lavis, A., Lester, H., Everard, L., Freemantle, N., Amos, T., Fowler, D., Hodgekins, J., Jones, P., Marshall, M., Sharma, V., Larsen, J., McCrone, P., Singh, Swaran P., Smith, J. and Birchwood, M. J. (2015) Layers of listening : qualitative analysis of the impact of early intervention services for first-episode psychosis on carers' experiences. The British Journal of Psychiatry, 207 (2). pp. 135-142. doi:10.1192/bjp.bp.114.146415 ISSN 0007-1250.

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Official URL: http://dx.doi.org/10.1192/bjp.bp.114.146415

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Abstract

Background: Early intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice.

Aims: By analysing carers’ accounts of their daily lives and affective challenges during a relative’s FEP against the background of wider research into EIS, this paper explores relationships between carers’ experiences and EIS.

Method: Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS.

Results: Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers’ emotions unacknowledged and compounding an existing lack of help-seeking.

Conclusions:
By focusing on EIS’s engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?

Item Type: Journal Article
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Journal or Publication Title: The British Journal of Psychiatry
Publisher: Royal College of Psychiatrists
ISSN: 0007-1250
Official Date: May 2015
Dates:
DateEvent
May 2015Published
Volume: 207
Number: 2
Page Range: pp. 135-142
DOI: 10.1192/bjp.bp.114.146415
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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