Cianfaglione, Rina, Hastings, Richard P., Felce, David, Clarke, Angus and Kerr, Michael P. (2015) Psychological well-being of mothers and siblings in families of girls and women with Rett syndrome. Journal of Autism and Developmental Disorders, 45 (9). pp. 2939-2946. doi:10.1007/s10803-015-2457-y

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Abstract

Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters’ behavioral phenotype, current health, and behavior problems, and their own and a sibling’s well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters’ RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters’ current health problems predicted more maternal perceptions of positive gain.

Item Type:	Journal Article
Divisions:	Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Journal or Publication Title:	Journal of Autism and Developmental Disorders
Publisher:	Springer
ISSN:	0162-3257
Official Date:	September 2015
Dates:	Date Event September 2015 Published
Volume:	45
Number:	9
Page Range:	pp. 2939-2946
DOI:	10.1007/s10803-015-2457-y
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access

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