Skip to content Skip to navigation
University of Warwick
  • Study
  • |
  • Research
  • |
  • Business
  • |
  • Alumni
  • |
  • News
  • |
  • About

University of Warwick
Publications service & WRAP

Highlight your research

  • WRAP
    • Home
    • Search WRAP
    • Browse by Warwick Author
    • Browse WRAP by Year
    • Browse WRAP by Subject
    • Browse WRAP by Department
    • Browse WRAP by Funder
    • Browse Theses by Department
  • Publications Service
    • Home
    • Search Publications Service
    • Browse by Warwick Author
    • Browse Publications service by Year
    • Browse Publications service by Subject
    • Browse Publications service by Department
    • Browse Publications service by Funder
  • Help & Advice
University of Warwick

The Library

  • Login
  • Admin

Paediatric palliative care : development and pilot study of a ‘Directory’ of life-limiting conditions

Tools
- Tools
+ Tools

Hain, Richard, Devins, Mary, Hastings, Richard P. and Noyes, Jane (2013) Paediatric palliative care : development and pilot study of a ‘Directory’ of life-limiting conditions. BMC Palliative Care, 12 (1). 43. doi:10.1186/1472-684X-12-43

[img]
Preview
PDF
WRAP_1472-684X-12-43.pdf - Published Version - Requires a PDF viewer.
Available under License Creative Commons Attribution 2.0..

Download (574Kb) | Preview
Official URL: http://dx.doi.org/10.1186/1472-684X-12-43

Request Changes to record.

Abstract

Background:
Children’s palliative care services are developing. Rational service development requires sound epidemiological data that are difficult to obtain owing to ambiguity in the definitions both of the population who needs palliative care and of palliative care itself. Existing definitions are of trajectory archetypes. The aim of this study was to develop and pilot a directory of the commonest specific diagnoses that map on to those archetypes.

Methods:
The diagnoses of patients under the care of five children hospices and a tertiary specialist palliative medicine service in the UK were recorded. Duplicates and diagnoses that were not life-limiting conditions according to the ACT/RCPCH criteria or were not primary were removed. The resulting Directory of life-limiting conditions was piloted by analysing Death Certificate data of children in Wales between 2002 and 2007.

Results:
1590 diagnoses from children’s hospices and 105 from specialist palliative medicine were combined. After removals there were 376 diagnostic label. All ICD10 chapter headings were represented by at least one condition. The pilot study showed that 569 (54%) deaths in Wales were caused by LLC. Only four LLC resulted in ten or more deaths. Among deaths from LLC, the ten commonest diagnoses accounted for 32%, while the 136 diagnoses that caused one or two deaths accounted for 25%. The majority occurred from a small number of life-limiting conditions.

Conclusion:
The Directory is a practical tool for identifying most life-limiting conditions using ICD10 codes that facilitates extraction and analysis of data from existing sources in respect of life-limiting conditions in children such as death certificate data, offering the potential for rapid and precise studies in paediatric palliative care.

Item Type: Journal Article
Subjects: R Medicine > RJ Pediatrics
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): Pediatrics, Palliative treatment
Journal or Publication Title: BMC Palliative Care
Publisher: BioMed Central Ltd.
ISSN: 1472-684X
Official Date: 11 December 2013
Dates:
DateEvent
11 December 2013Published
19 November 2013Accepted
3 May 2013Submitted
Volume: 12
Number: 1
Article Number: 43
DOI: 10.1186/1472-684X-12-43
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
Adapted As:

Request changes or add full text files to a record

Repository staff actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics

twitter

Email us: wrap@warwick.ac.uk
Contact Details
About Us