Skip to content Skip to navigation
University of Warwick
  • Study
  • |
  • Research
  • |
  • Business
  • |
  • Alumni
  • |
  • News
  • |
  • About

University of Warwick
Publications service & WRAP

Highlight your research

  • WRAP
    • Home
    • Search WRAP
    • Browse by Warwick Author
    • Browse WRAP by Year
    • Browse WRAP by Subject
    • Browse WRAP by Department
    • Browse WRAP by Funder
    • Browse Theses by Department
  • Publications Service
    • Home
    • Search Publications Service
    • Browse by Warwick Author
    • Browse Publications service by Year
    • Browse Publications service by Subject
    • Browse Publications service by Department
    • Browse Publications service by Funder
  • Help & Advice
University of Warwick

The Library

  • Login
  • Admin

Perceptions and discourses relating to genetic testing : interviews with people with Down syndrome

Tools
- Tools
+ Tools

Barter, B., Hastings, Richard P., Williams, R. R. and Huws, J. (2017) Perceptions and discourses relating to genetic testing : interviews with people with Down syndrome. Journal of Applied Research in Intellectual Disabilities, 30 (2). pp. 395-406. doi:10.1111/jar.12256 ISSN 1468-3148.

[img]
Preview
PDF
WRAP_1274202-cedar-120216-barter_et_al_jarid_final %281%29.pdf - Accepted Version - Requires a PDF viewer.

Download (609Kb) | Preview
Official URL: http://dx.doi.org/10.1111/jar.12256

Request Changes to record.

Abstract

Background:
The perceptions of individuals with Down syndrome are conspicuously absent in discussions about the use of prenatal testing.

Method:
Eight individuals with Down syndrome were interviewed about their views and experience of the topic of prenatal testing.

Results:
Interpretative Phenomenological Analysis revealed two major themes with sub themes: 1) A devalued condition and a valued life and 2) A question of โ€˜want?โ€™ Foucauldian Discourse Analysis highlighted two main discursive practices: 1) Social deviance and 2) Tragedy and catastrophe of the birth of a baby with Down syndrome.

Conclusions:
The findings suggest that individuals with intellectual disabilities can make a valuable contribution to discussions surrounding the use of prenatal testing. Implications for clinical practice include the use of information about Down syndrome given to prospective parents, and the possible psychological impact of prenatal testing practices on individuals with Down syndrome.

Item Type: Journal Article
Subjects: R Medicine > RJ Pediatrics
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): Down syndrome, Prenatal diagnosis
Journal or Publication Title: Journal of Applied Research in Intellectual Disabilities
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1468-3148
Official Date: March 2017
Dates:
DateEvent
March 2017Published
11 May 2016Available
29 January 2016Accepted
Volume: 30
Number: 2
Page Range: pp. 395-406
DOI: 10.1111/jar.12256
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Date of first compliant deposit: 19 February 2016
Date of first compliant Open Access: 11 May 2018

Request changes or add full text files to a record

Repository staff actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics

twitter

Email us: wrap@warwick.ac.uk
Contact Details
About Us