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Patient empowerment and its neighbours : clarifying the boundaries and their mutual relationships

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Fumagalli, Lia Paola, Radaelli, Giovanni, Lettieri, Emanuele, Bertele’, Paolo and Masella, Cristina (2015) Patient empowerment and its neighbours : clarifying the boundaries and their mutual relationships. Health Policy, 119 (3). pp. 384-394. doi:10.1016/j.healthpol.2014.10.017

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Official URL: http://dx.doi.org/10.1016/j.healthpol.2014.10.017

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Abstract

Patients are increasingly encouraged to become active players in self-care and shared decision-making. Such attention has led to an explosion of terms – empowerment, engagement, enablement, participation, involvement, activation – each having multiple and overlapping meanings. The resulting ambiguity inhibits an effective use of existing evidence. This study addresses this problem by delivering an evidence-based concept mapping of these terms that delineates their boundaries and mutual relationships. We implemented a literature review of contributions associated to patient empowerment, activation, engagement, enablement, involvement, and participation. We implemented a keyword-based strategy collecting contributions published in PubMed database in the 1990–2013 timespan. A total of 286 articles were selected. The results identified three distinct interpretation of patient empowerment, either conceived as a process, an emergent state or as a participative behaviour. Most definitions recognize empowerment as the combination of ability, motivation and power opportunities. A concept mapping for patient empowerment, activation, enablement, engagement, involvement, and participation was then delineated. The concept map consists of two dimensions (nature and focus of concept) and marks distinctions and relationships between the concepts. The resulting concept map paves the way for a number of future research directions that can help improve our understanding of the antecedents and consequences of patient empowerment policies.

Item Type: Journal Article
Divisions: Faculty of Social Sciences > Warwick Business School > Entrepreneurship, Innovation & Management
Faculty of Social Sciences > Warwick Business School
Journal or Publication Title: Health Policy
Publisher: Elsevier Ireland Ltd.
ISSN: 0168-8510
Official Date: March 2015
Dates:
DateEvent
March 2015Published
Volume: 119
Number: 3
Page Range: pp. 384-394
DOI: 10.1016/j.healthpol.2014.10.017
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access

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