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Quality of life in the care home : a qualitative study of the perspectives of residents with multiple sclerosis
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Riazi, A., Bradshaw, S. A. and Playford, E. Diane (2012) Quality of life in the care home : a qualitative study of the perspectives of residents with multiple sclerosis. Disability and Rehabilitation, 34 (24). pp. 2095-2102. doi:10.3109/09638288.2012.672539 ISSN 0963-8288.
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Official URL: http://dx.doi.org/10.3109/09638288.2012.672539
Abstract
PURPOSE: Care home residents with multiple sclerosis (MS) are more physically dependent than the average residents. However, little is known about their quality of life (QoL). We investigated the experiences of residents with MS using qualitative research methods and developed a conceptual model of QoL. METHODS: Twenty-one people with MS (age range 43-80 years) residing in a range of care homes were interviewed. The interviews were transcribed verbatim and analyzed using the constant comparative method. RESULTS: Four core model domains identified were as follows: (i) What the care home means to the residents, (ii) Self, (iii) Environment and (iv) Relationships. Some residents reported that care homes can relieve the burden on family, address specific environmental issues regarding safety and act as a form of social support. However, some reported isolation and difficulties adjusting to life in the care home. Having access to rehabilitation strengthened the feelings of independence within the care home. CONCLUSIONS: QoL is a broad, multidimensional construct for residents with MS. QoL measures for residents with MS should incorporate broad domains, including environmental factors. The conceptual model highlighted several areas for improving QoL of residents with MS, including more involvement of family members, encouraging independence by providing access to rehabilitation and providing support in the transition process.
| Item Type: | Journal Article | ||||||||
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| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Journal or Publication Title: | Disability and Rehabilitation | ||||||||
| Publisher: | Taylor & Francis Ltd. | ||||||||
| ISSN: | 0963-8288 | ||||||||
| Official Date: | 2012 | ||||||||
| Dates: |
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| Volume: | 34 | ||||||||
| Number: | 24 | ||||||||
| Page Range: | pp. 2095-2102 | ||||||||
| DOI: | 10.3109/09638288.2012.672539 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Restricted or Subscription Access | ||||||||
| Related URLs: |
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