Skip to content Skip to navigation
University of Warwick
  • Study
  • |
  • Research
  • |
  • Business
  • |
  • Alumni
  • |
  • News
  • |
  • About

University of Warwick
Publications service & WRAP

Highlight your research

  • WRAP
    • Home
    • Search WRAP
    • Browse by Warwick Author
    • Browse WRAP by Year
    • Browse WRAP by Subject
    • Browse WRAP by Department
    • Browse WRAP by Funder
    • Browse Theses by Department
  • Publications Service
    • Home
    • Search Publications Service
    • Browse by Warwick Author
    • Browse Publications service by Year
    • Browse Publications service by Subject
    • Browse Publications service by Department
    • Browse Publications service by Funder
  • Help & Advice
University of Warwick

The Library

  • Login
  • Admin

Combined cognitive–behavioural and mindfulness programme for people living with dystonia : a proof-of-concept study

Tools
- Tools
+ Tools

Sandhu, Harbinder, Bernstein, Celia J., Davies, G., Tang, Nicole K. Y., Belhag, M., Tingle, A., Field, M., Foss, Jonathan G. K., Lindahl, A., Underwood, Martin and Ellard, David R. (2016) Combined cognitive–behavioural and mindfulness programme for people living with dystonia : a proof-of-concept study. BMJ Open, 6 (8). e011495. doi:10.1136/bmjopen-2016-011495

[img] PDF
WRAP-BMJ Open-2016-Sandhu-.pdf - Published Version - Requires a PDF viewer.
Available under License Creative Commons: Attribution-No Derivative Works 4.0.

Download (1487Kb)
Official URL: http://dx.doi.org/10.1136/bmjopen-2016-011495

Request Changes to record.

Abstract

Objectives To design and test the delivery of an intervention targeting the non-motor symptoms of dystonia and pilot key health and well-being questionnaires in this population.

Design A proof-of-concept study to test the delivery, acceptability, relevance, structure and content for a 3-day group residential programme for the management of dystonia.

Setting Participants were recruited from a single botulinum toxin clinic. The intervention was delivered in the community.

Participants 14 participants consented to take part (2 withdrew prior to the starting of intervention). The average age was 60 years (range 44–77), 8 of whom were female. After drop-out, 9 participants completed the 3-day programme.

Intervention A 3-day group residential programme.

Primary and secondary outcome measures Process evaluation and interviews were carried out before and after the intervention to explore participant's views and expectations, as well as experiences of the intervention. Select questionnaires were completed at baseline, 1-month and 3-month follow-up.

Results Although participants were not sure what to expect from the programme, they found it informative and for many this together with being in a group with other people with dystonia legitimised their condition. Mindfulness was accepted and adopted as a coping strategy. This was reflected in the 1-month follow-up.

Conclusions We successfully delivered a 3-day residential programme to help those living with dystonia manage their condition. Further improvements are suggested. The quantitative outcome measures were acceptable to this group of patients with dystonia.

Item Type: Journal Article
Subjects: R Medicine > RC Internal medicine
Divisions: Faculty of Science > Computer Science
Faculty of Medicine > Warwick Medical School > Health Sciences > Clinical Trials Unit
Faculty of Medicine > Warwick Medical School > ( - July 2016) Health Education Hub
Faculty of Science > Psychology
Faculty of Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Dystonia -- Treatment, Muscles -- Diseases
Journal or Publication Title: BMJ Open
Publisher: BMJ
ISSN: 2044-6055
Official Date: 5 August 2016
Dates:
DateEvent
5 August 2016Published
3 June 2016Accepted
12 February 2016Submitted
Volume: 6
Number: 8
Article Number: e011495
DOI: 10.1136/bmjopen-2016-011495
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
Funder: Dystonia Society, University of Warwick. Development and Alumni Relations Office (DARO), Birmingham Science City, Advantage West Midlands (AWM)

Request changes or add full text files to a record

Repository staff actions (login required)

View Item View Item

Downloads

Downloads per month over past year

View more statistics

twitter

Email us: wrap@warwick.ac.uk
Contact Details
About Us