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Combined cognitive–behavioural and mindfulness programme for people living with dystonia : a proof-of-concept study
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Sandhu, Harbinder, Bernstein, Celia J., Davies, G., Tang, Nicole K. Y., Belhag, M., Tingle, A., Field, M., Foss, Jonathan G. K., Lindahl, A., Underwood, Martin and Ellard, David R. (2016) Combined cognitive–behavioural and mindfulness programme for people living with dystonia : a proof-of-concept study. BMJ Open, 6 (8). e011495. doi:10.1136/bmjopen-2016-011495
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Official URL: http://dx.doi.org/10.1136/bmjopen-2016-011495
Abstract
Objectives To design and test the delivery of an intervention targeting the non-motor symptoms of dystonia and pilot key health and well-being questionnaires in this population.
Design A proof-of-concept study to test the delivery, acceptability, relevance, structure and content for a 3-day group residential programme for the management of dystonia.
Setting Participants were recruited from a single botulinum toxin clinic. The intervention was delivered in the community.
Participants 14 participants consented to take part (2 withdrew prior to the starting of intervention). The average age was 60 years (range 44–77), 8 of whom were female. After drop-out, 9 participants completed the 3-day programme.
Intervention A 3-day group residential programme.
Primary and secondary outcome measures Process evaluation and interviews were carried out before and after the intervention to explore participant's views and expectations, as well as experiences of the intervention. Select questionnaires were completed at baseline, 1-month and 3-month follow-up.
Results Although participants were not sure what to expect from the programme, they found it informative and for many this together with being in a group with other people with dystonia legitimised their condition. Mindfulness was accepted and adopted as a coping strategy. This was reflected in the 1-month follow-up.
Conclusions We successfully delivered a 3-day residential programme to help those living with dystonia manage their condition. Further improvements are suggested. The quantitative outcome measures were acceptable to this group of patients with dystonia.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Subjects: | R Medicine > RC Internal medicine | ||||||||
| Divisions: | Faculty of Science > Computer Science Faculty of Medicine > Warwick Medical School > Health Sciences > Clinical Trials Unit Faculty of Medicine > Warwick Medical School > ( - July 2016) Health Education Hub Faculty of Science > Psychology Faculty of Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Dystonia -- Treatment, Muscles -- Diseases | ||||||||
| Journal or Publication Title: | BMJ Open | ||||||||
| Publisher: | BMJ | ||||||||
| ISSN: | 2044-6055 | ||||||||
| Official Date: | 5 August 2016 | ||||||||
| Dates: |
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| Date of first compliant deposit: | 16 September 2016 | ||||||||
| Volume: | 6 | ||||||||
| Number: | 8 | ||||||||
| Article Number: | e011495 | ||||||||
| DOI: | 10.1136/bmjopen-2016-011495 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access | ||||||||
| Funder: | Dystonia Society, University of Warwick. Development and Alumni Relations Office (DARO), Birmingham Science City, Advantage West Midlands (AWM) |
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