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Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services
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Parslow, Roxanne M., Shaw, Alison, Haywood, Kirstie L. and Crawley, Esther (2017) Important factors to consider when treating children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) : perspectives of health professionals from specialist services. BMC Pediatrics, 17 (1).
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WRAP_art%3A10.1186%2Fs12887-017-0799-7.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution 4.0. Download (769Kb) | Preview |
Official URL: https://doi.org/10.1186/s12887-017-0799-7
Abstract
Background
Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide clinical insight into the condition, its treatment and possible outcomes. This study aimed to understand the perspectives of specialist paediatric CFS/ME health professionals and identify outcomes that are clinically important.
Methods
Focus groups and interviews were held with 15 health professionals involved in the care of children with CFS/ME from the four largest specialist paediatric CFS/ME services in the NHS in England. A range of clinical disciplines were included and experience in paediatric CFS/ME ranged from 2 months to 25 years. Ten participants (67%) were female. Focus groups and interviews were recorded, transcribed verbatim and data were analysed using thematic analysis.
Results
All health professionals identified the impact of CFS/ME across multiple aspects of health. Health professionals described four areas used to assess the severity of the illness and outcome in children: 1) symptoms; 2) physical function; 3) participation (school, activities and social life); and 4) emotional wellbeing. They also described the complexity of the condition, contextual factors and considerations for treatment to help children to cope with the condition.
Conclusions
Clinically important outcomes in paediatric CFS/ME involve a range of aspects of health. Health professionals consider increases in physical function yet maintaining school functioning and participation more widely as important outcomes from treatment. The results are similar to those described by children in a recent study and will be combined to develop a new child-specific PROM that has strong clinical utility and patient relevance
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RJ Pediatrics | ||||||||
| Divisions: | Faculty of Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Chronic fatigue syndrome in children -- Treatment, Myalgic encephalomyelitis, Pediatricians -- Interviews | ||||||||
| Journal or Publication Title: | BMC Pediatrics | ||||||||
| Publisher: | BioMed Central Ltd. | ||||||||
| ISSN: | 1471-2431 | ||||||||
| Official Date: | 1 February 2017 | ||||||||
| Dates: |
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| Date of first compliant deposit: | 9 February 2017 | ||||||||
| Volume: | 17 | ||||||||
| Number: | 1 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access | ||||||||
| Funder: | University of Bristol |
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