The Library
Rigour and rapport : a qualitative study of parents' and professionals' experiences of joint agency infant death investigation
Tools
Tools
Tools
Garstang, Joanna, Griffiths, Frances and Sidebotham, Peter (2017) Rigour and rapport : a qualitative study of parents' and professionals' experiences of joint agency infant death investigation. BMC Pediatrics, 17 (48). 803. doi:10.1186/s12887-017-0803-2 ISSN 1471-2431.
|
PDF
WRAP-qualitative-parents-professionals-experiences-joint-agency-infant-death-investigation-Griffiths-2017.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution 4.0. Download (1127Kb) | Preview |
Official URL: http://dx.doi.org/10.1016/10.1186/s12887-017-0803-...
Abstract
Background: In many countries there are now detailed Child Death Review (CDR) processes following unexpected child deaths. CDR can lead to a fuller understanding of the causes for each child’s death but this potentially intrusive process may increase the distress of bereaved families. In England, a joint agency approach (JAA) is used where police, healthcare and social services investigate sudden child deaths together and a key part of this is the joint home visit (JHV) where specialist police and paediatricians visit the home with the parents to view the scene of death.
This study aimed to learn of bereaved parents’ experiences of JAA investigation following Sudden Unexpected Death in Infancy (SUDI).
Methods: This was a qualitative study of joint agency investigation of SUDI by specialist police, healthcare and social services including case note analysis, parental questionnaires, and in-depth interviews with parents and professionals. Families were recruited at the conclusion of the JAA. Data were analysed using a Framework Approach.
Results: 21/113 eligible families and 26 professionals participated giving theoretical saturation of data. There was an inherent conflict for professionals trying to both investigate deaths thoroughly as well as support families. Bereaved parents appreciated the JAA especially for the information it provided about the cause of death but were frustrated
with long delays waiting to obtain this. Many parents wanted more emotional support to be routinely provided. Most parents found the JHV helpful but a small minority of mothers found this intensely distressing. In comparison to JHVs, when police visited death scenes without paediatricians, information was missed and parents found these visits
more upsetting. There were issues with uniformed non-specialist police traumatising parents by starting criminal investigations and preventing parents from accessing their home or collecting vital possessions.
Conclusions: Overall most parents feel supported by professionals during the JAA; however there is scope for improvement. Paediatricians should ensure that parents are kept updated with the progress of the investigations. Some parents require more emotional support and professionals should assist them in accessing this.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Subjects: | B Philosophy. Psychology. Religion > BF Psychology ?? Bereaved parents ?? ?? Child Death Review ?? ?? Inter-professional working ?? J Political Science > JN Political institutions (Europe) > JN101 Great Britain ?? Physician-parent communication ?? R Medicine > R Medicine (General) R Medicine > RJ Pediatrics ?? Sudden Infant Death Syndrome (SIDS) ?? ?? Sudden Unexpected Death in Infancy (SUDI) ?? |
||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
||||||||
| SWORD Depositor: | Library Publications Router | ||||||||
| Library of Congress Subject Headings (LCSH): | Sudden infant death syndrome, Bereavement -- Psychological aspects, Children -- Death -- Psychological aspects, Physician and patient, Communication in pediatrics, Intergovernmental cooperation, | ||||||||
| Journal or Publication Title: | BMC Pediatrics | ||||||||
| Publisher: | BioMed Central Ltd. | ||||||||
| ISSN: | 1471-2431 | ||||||||
| Official Date: | 7 February 2017 | ||||||||
| Dates: |
|
||||||||
| Volume: | 17 | ||||||||
| Number: | 48 | ||||||||
| Number of Pages: | 10 | ||||||||
| Article Number: | 803 | ||||||||
| DOI: | 10.1186/s12887-017-0803-2 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Date of first compliant deposit: | 3 April 2018 | ||||||||
| Date of first compliant Open Access: | 3 April 2018 | ||||||||
| RIOXX Funder/Project Grant: |
|
Request changes or add full text files to a record
Repository staff actions (login required)
 |
View Item |
Downloads
Downloads per month over past year
