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Transferring young people with cystic fibrosis to adult care
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Tierney, Stephanie, Kirk, Sue and Deaton, Christi (2015) Transferring young people with cystic fibrosis to adult care. Nursing Standard, 30 (16). pp. 41-47. doi:10.7748/ns.30.16.41.s45
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Official URL: http://dx.doi.org/10.7748/ns.30.16.41.s45
Abstract
Aim: To explore activities, interactions and behaviours during the first appointment in adult care for young people with cystic fibrosis.
Method: Observational data were collected at 12 first appointments. Framework analysis was applied to written field notes.
Findings: Interaction enablers and interaction barriers were identified in the data. Practitioners endeavoured to be holistic, addressing personal as well as physical factors. This involved broaching individuals’ interests, self-disclosure and humour. Various activities were accomplished. The role of parents in the continued management of cystic fibrosis was not raised at first appointments.
Discussion: Practitioners require clear objectives for first appointments in adult care to ensure young people adapt to this new healthcare setting. Young people should be prepared for transfer so they can respond to and ask questions, and parents should be assisted to relinquish control of their child’s condition.
Conclusion: A modest set of objectives for the first appointment should be set to enable young people to retain information, while introducing them to a new service.
| Item Type: | Journal Article | ||||||
|---|---|---|---|---|---|---|---|
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing > Royal College of Nursing Research Institute (RCN) (- July 2017) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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| Journal or Publication Title: | Nursing Standard | ||||||
| Publisher: | R C N Publishing Co. | ||||||
| ISSN: | 0029-6570 | ||||||
| Official Date: | 16 December 2015 | ||||||
| Dates: |
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| Volume: | 30 | ||||||
| Number: | 16 | ||||||
| Page Range: | pp. 41-47 | ||||||
| DOI: | 10.7748/ns.30.16.41.s45 | ||||||
| Status: | Peer Reviewed | ||||||
| Publication Status: | Published | ||||||
| Access rights to Published version: | Restricted or Subscription Access |
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