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Challenges of optimizing glycaemic control in children with Type 1 diabetes : a qualitative study of parents' experiences and views
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Lawton, J., Waugh, Norman, Barnard, K. D., Noyes, K., Harden, J., Stephen, J., McDowell, J. and Rankin, D. (2015) Challenges of optimizing glycaemic control in children with Type 1 diabetes : a qualitative study of parents' experiences and views. Diabetic Medicine, 32 (8). pp. 1063-1070. doi:10.1111/dme.12660 ISSN 0742-3071.
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Official URL: http://dx.doi.org/10.1111/dme.12660
Abstract
Aims
To explore the difficulties parents encounter in trying to achieve clinically recommended blood glucose levels and how they could be better supported to optimize their child's glycaemic control.
Methods
In-depth interviews were conducted with 54 parents of children with Type 1 diabetes (≤ 12 years). Data were analysed thematically.
Results
Parents described being reluctant and finding it difficult to keep their child's blood glucose levels consistently within clinically recommended ranges. As well as worrying about their child's ability to detect/report hypoglycaemia, parents highlighted a multitude of factors that had an impact on their child's blood glucose levels and over which they could exercise little control. These included: leaving their child with other caregivers who could not be trusted to detect hypoglycaemia; difficulties remotely monitoring and regulating their child's food consumption and activity; and physical and social changes accompanying childhood development. Most parents used two sets of blood glucose targets, with clinically recommended targets employed when their child was in their immediate care and higher targets when in the care of others. Parents described health professionals as lacking understanding of the difficulties they encountered keeping blood glucose within target ranges and needing more empathetic, tailored and realistic advice.
Conclusion
It is not parents' fear of hypoglycaemia in isolation that leads to decisions to raise their child's blood glucose but, rather, parental fear in conjunction with other factors and considerations. Hence, to improve diabetes management in children, these factors may need to be addressed; for instance, by training others in diabetes management and using new technologies. Changes to consultations are also recommended.
Item Type: | Journal Article | ||||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | Diabetic Medicine | ||||||
Publisher: | Blackwell | ||||||
ISSN: | 0742-3071 | ||||||
Official Date: | August 2015 | ||||||
Dates: |
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Volume: | 32 | ||||||
Number: | 8 | ||||||
Page Range: | pp. 1063-1070 | ||||||
DOI: | 10.1111/dme.12660 | ||||||
Status: | Peer Reviewed | ||||||
Publication Status: | Published | ||||||
Access rights to Published version: | Restricted or Subscription Access |
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