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Assessing the impact of headaches and the outcomes of treatment : a systematic review of patient-reported outcome measures (PROMs)
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Haywood, Kirstie L., Mars, Tom S., Potter, Rachel, Patel, Shilpa, Matharu, Manjit and Underwood, Martin (2018) Assessing the impact of headaches and the outcomes of treatment : a systematic review of patient-reported outcome measures (PROMs). Cephalalgia, 38 (7). pp. 1374-1386. doi:10.1177/0333102417731348
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Official URL: https://doi.org/10.1177/0333102417731348
Abstract
Aims:
To critically appraise, compare and synthesise the quality and acceptability of multi-item PROMs for adults with chronic or episodic headache.
Methods:
Systematic literature searches of major databases (1980-2016) to identify published evidence of PROM measurement and practical properties. Data on study quality (COSMIN), measurement and practical properties per measure was extracted and assessed against accepted standards to inform an evidence synthesis.
Results:
From 10,903 reviewed abstracts, 103 articles were assessed in full; 46 provided evidence for 23 PROMs: eleven specific to the health-related impact of migraine (n=5) or headache (n=6); six assessed migraine-specific treatment response/satisfaction; six were generic measures.
Evidence for measurement validity and score interpretation was strongest for two measures of impact - Migraine-Specific Quality of Life Questionnaire (MSQ v2.1) and Headache Impact Test 6-item (HIT-6), and one of treatment response - the Patient Perception of Migraine Questionnaire (PPMQ-R). Evidence of reliability was limited, but acceptable for the HIT-6. Responsiveness was rarely evaluated. Evidence for the remaining measures was limited. Patient involvement was limited and poorly reported.
Conclusion:
Whilst evidence is limited, three measures have acceptable evidence of reliability and validity - HIT-6, MSQ v2.1 and PPMQ-R. Only the HIT-6 has acceptable evidence supporting its completion by all ‘headache’ populations.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RC Internal medicine | ||||||||
| Divisions: | Faculty of Medicine > Warwick Medical School > Health Sciences > Clinical Trials Unit Faculty of Medicine > Warwick Medical School > Health Sciences Faculty of Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Medicine > Warwick Medical School |
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| Library of Congress Subject Headings (LCSH): | Headache -- Treatment, Outcome assessment (Medical care), Systematic reviews (Medical research), Patient satisfaction | ||||||||
| Journal or Publication Title: | Cephalalgia | ||||||||
| Publisher: | Blackwell Publishing | ||||||||
| ISSN: | 0333-1024 | ||||||||
| Official Date: | 2018 | ||||||||
| Dates: |
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| Date of first compliant deposit: | 23 August 2017 | ||||||||
| Volume: | 38 | ||||||||
| Number: | 7 | ||||||||
| Page Range: | pp. 1374-1386 | ||||||||
| DOI: | 10.1177/0333102417731348 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access | ||||||||
| Funder: | National Institute for Health Research (Great Britain). Applied Research Programme (ARP NIHR) | ||||||||
| Grant number: | RP-PG-1212-20018 |
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