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Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review
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Flynn, Samantha, Vereenooghe, Leen, Hastings, Richard P., Adams, Dawn, Cooper, Sally-Ann, Gore, Nick, Hatton, Chris, Hood, Kerry, Jahoda, Andrew, Langdon, Peter E., McNamara, Rachel, Oliver, Chris, Roy, Ashok, Totsika, Vasiliki and Waite, Jane (2017) Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities : a systematic review. Clinical Psychology Review, 57 . pp. 32-44. doi:10.1016/j.cpr.2017.08.006 ISSN 0272-7358.
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Official URL: http://dx.doi.org/10.1016/j.cpr.2017.08.006
Abstract
Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behavior Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.
Item Type: | Journal Article | ||||||||
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Subjects: | R Medicine > RC Internal medicine | ||||||||
Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
Library of Congress Subject Headings (LCSH): | People with mental disabilities -- Mental health, Systematic reviews (Medical research) | ||||||||
Journal or Publication Title: | Clinical Psychology Review | ||||||||
Publisher: | Pergamon | ||||||||
ISSN: | 0272-7358 | ||||||||
Official Date: | November 2017 | ||||||||
Dates: |
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Volume: | 57 | ||||||||
Page Range: | pp. 32-44 | ||||||||
DOI: | 10.1016/j.cpr.2017.08.006 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Date of first compliant deposit: | 11 October 2017 | ||||||||
Date of first compliant Open Access: | 11 August 2019 | ||||||||
Funder: | Baily Thomas Charitable Fund (BTCF), University of Warwick | ||||||||
Grant number: | TRUST/RNA/AC/SG/3543/6297 (BTCF), REGO-2015-1605 (University of Warwick) |
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