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Reaching consensus on reporting patient and public involvement (PPI) in research : methods and lessons learned from the development of reporting guidelines
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Brett, Jo, Staniszewska, Sophie, Simera, Iveta, Seers, Kate, Mockford, Carole, Goodlad, Susan, Altman, Doug, Moher, David, Barber, Rosemary, Denegri, Simon, Entwistle, Andrew Robert, Littlejohns, Peter, Morris, Christopher, Suleman, Rashida, Thomas, Victoria and Tysall, Colin (2017) Reaching consensus on reporting patient and public involvement (PPI) in research : methods and lessons learned from the development of reporting guidelines. BMJ Open, 7 (10). e016948. doi:10.1136/bmjopen-2017-016948 ISSN 2044-6055.
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WRAP-reaching-consensus-reporting-patient-research-lessons-guidelines-Staniszewska-2018.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons: Attribution-Noncommercial 4.0. Download (1036Kb) | Preview |
Official URL: https://doi.org/10.1136/bmjopen-2017-016948
Abstract
Patient and public involvement (PPI) is inconsistently reported in health and social care research. Improving the quality of how PPI is reported is critical in developing a higher quality evidence base to gain a better insight into the methods and impact of PPI. This paper describes the methods used to develop and gain consensus on guidelines for reporting PPI in research studies (updated version of the Guidance for Reporting Patient and Public Involvement (GRIPP2)).There were three key stages in the development of GRIPP2: identification of key items for the guideline from systematic review evidence of the impact of PPI on health research and health services, a three-phase online Delphi survey with a diverse sample of experts in PPI to gain consensus on included items and a face-to-face consensus meeting to finalise and reach definitive agreement on GRIPP2. Challenges and lessons learnt during the development of the reporting guidelines are reported.The process of reaching consensus is vital within the development of guidelines and policy directions, although debate around how best to reach consensus is still needed. This paper discusses the critical stages of consensus development as applied to the development of consensus for GRIPP2 and discusses the benefits and challenges of consensus development.
| Item Type: | Journal Article | |||||||||
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| Subjects: | R Medicine > R Medicine (General) | |||||||||
| Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Dean's Office & Professional Support Services | |||||||||
| SWORD Depositor: | Library Publications Router | |||||||||
| Library of Congress Subject Headings (LCSH): | Clinical trials -- Standards -- Great Britain, Evidence-based medicine | |||||||||
| Journal or Publication Title: | BMJ Open | |||||||||
| Publisher: | BMJ | |||||||||
| ISSN: | 2044-6055 | |||||||||
| Official Date: | 1 October 2017 | |||||||||
| Dates: |
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| Volume: | 7 | |||||||||
| Number: | 10 | |||||||||
| Article Number: | e016948 | |||||||||
| DOI: | 10.1136/bmjopen-2017-016948 | |||||||||
| Status: | Peer Reviewed | |||||||||
| Publication Status: | Published | |||||||||
| Reuse Statement (publisher, data, author rights): | ** From Europe PMC via Jisc Publications Router. ** Licence for this article: cc by-nc | |||||||||
| Access rights to Published version: | Open Access (Creative Commons) | |||||||||
| Date of first compliant deposit: | 31 January 2018 | |||||||||
| Date of first compliant Open Access: | 31 January 2018 | |||||||||
| RIOXX Funder/Project Grant: |
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