Soeterik, Sonja M., Connolly, Sarah, Playford, E. Diane, Duport, Sophie and Riazi, Afsane (2017) The psychological impact of prolonged disorders of consciousness on caregivers : a systematic review of quantitative studies. Clinical Rehabilitation, 31 (10). pp. 1374-1385. doi:10.1177/0269215517695372 ISSN 0269-2155.

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Abstract

Objective:
Systematic review of the nature, frequency and severity of psychological experiences of people who have a close relationship with a person with a prolonged disorder of consciousness.

Data sources:
Cochrane Library, Web of Science, PsycINFO, PubMed, Embase®, MEDLINE®, Allied and Complementary Medicine™, were searched from inceptions until December 2016 with additional hand searching of reference lists of included articles.

Review methods:
Studies were included that used quantitative methodologies and psychological measures to investigate experiences. The PRISMA statement was followed with inclusion criteria set a priori. A data synthesis summarized psychological constructs studied.

Results:
A total of 18 studies (ranging between n = 16–487 participants) met the inclusion criteria with 15 of 18 studies focused on the primary caregiver. A total of 23 standardized psychological measures were identified to assess four primary psychological constructs: Loss and grief, psychological wellbeing changes, burden and use of coping strategies.

Conclusions:
Small sample sizes, limited variables and reliance on observational methods affected quality. Caregivers do find ways to manage independently, but some exhibit clinically significant psychological distress that does not change over time alone and may get worse.

Item Type:	Journal Article
Divisions:	Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Social Science & Systems in Health (SSSH) Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Journal or Publication Title:	Clinical Rehabilitation
Publisher:	Sage Publications Ltd.
ISSN:	0269-2155
Official Date:	1 October 2017
Dates:	Date Event 1 October 2017 Published 14 March 2017 Available 2 February 2017 Accepted 14 October 2015 Submitted
Volume:	31
Number:	10
Page Range:	pp. 1374-1385
DOI:	10.1177/0269215517695372
Status:	Peer Reviewed
Publication Status:	Published
Access rights to Published version:	Restricted or Subscription Access
Date of first compliant deposit:	30 January 2018
Date of first compliant Open Access:	30 January 2018

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