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How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation
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Wilson, P. M., Mathie, E., Poland, F., Keenan, J., Howe, A., Munday, D., Kendall, S., Cowe, M., Staniszewska, Sophie and Goodman, C. (2018) How embedded is public involvement in mainstream health research in England a decade after policy implementation? A realist evaluation. Journal of Health Services Research and Policy, 23 (2). pp. 98-106. doi:10.1177/1355819617750688
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Official URL: https://doi.org/10.1177/1355819617750688
Abstract
Objectives:
To explore how embedded patient and public involvement (PPI) is within mainstream health research following two decades of policy-driven work to underpin health research with PPI in England.
Methods:
Realist evaluation using Normalization Process Theory as a programme theory to understand what enabled PPI to be embedded as normal practice. Data was collected through a national scoping and survey, and qualitative methods to track PPI processes and impact over time within 22 nationally funded research projects.
Results:
In research studies that were able to create reciprocal working relationships and to embed PPI this was contingent on: the purpose of PPI being clear; public contributors reflecting research end-beneficiaries; researchers understanding the value of PPI; PPI opportunities being provided throughout the research; and ongoing evaluation of PPI. Key contested areas included: whether to measure PPI impact; seeking public contributors to maintain a balance between being research-aware and an outsider standpoint seen as ‘authentically’ lay; scaling-up PPI embedded within a research infrastructure rather than risk token presence ; and whether PPI can have a place within basic science.
Conclusion:
While PPI can be well-integrated within all types of research, policy makers should take account of tensions that must be navigated in balancing the moral and methodological imperatives.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RA Public aspects of medicine | ||||||||
| Divisions: | Faculty of Medicine > Warwick Medical School > Health Sciences Faculty of Medicine > Warwick Medical School Faculty of Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing |
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| Library of Congress Subject Headings (LCSH): | Medical care -- Government policy -- England, Patients | ||||||||
| Journal or Publication Title: | Journal of Health Services Research and Policy | ||||||||
| Publisher: | Royal Society of Medicine Press Ltd. | ||||||||
| ISSN: | 1355-8196 | ||||||||
| Official Date: | 1 April 2018 | ||||||||
| Dates: |
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| Volume: | 23 | ||||||||
| Number: | 2 | ||||||||
| Page Range: | pp. 98-106 | ||||||||
| DOI: | 10.1177/1355819617750688 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access | ||||||||
| RIOXX Funder/Project Grant: |
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