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Digital clinical communication for families and caregivers of children or young people with short- or long-term conditions : rapid review

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Armoiry, Xavier, Sturt, Jackie, Phelps, Emma Elizabeth, Walker, Clare, Court, Rachel A., Taggart, Frances M., Sutcliffe, Paul, Griffiths, Frances and Atherton, Helen (2018) Digital clinical communication for families and caregivers of children or young people with short- or long-term conditions : rapid review. Journal of Medical Internet Research, 20 (1). e5. doi:10.2196/jmir.7999

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Official URL: http://dx.doi.org/10.2196/jmir.7999

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Abstract

Background: The communication relationship between parents of children or young people with health conditions and health professionals is an important part of treatment, but it is unclear how far the use of digital clinical communication tools may affect this relationship.

Objective: The objective of our study was to describe, assess the feasibility of, and explore the impact of digital clinical communication between families or caregivers and health professionals.

Methods: We searched the literature using 5 electronic databases. We considered all types of study design published in the English language from January 2009 to August 2015. The population of interest included families and caregivers of children and young people aged less than 26 years with any type of health condition. The intervention was any technology permitting 2-way communication.

Results: We included 31 articles. The main designs were randomized controlled trials (RCTs; n=10), cross-sectional studies (n=9), pre- and postintervention uncontrolled (pre/post) studies (n=7), and qualitative interview studies (n=2); 6 had mixed-methods designs. In the majority of cases, we considered the quality rating to be fair. Many different types of health condition were represented. A breadth of digital communication tools were included: videoconferencing or videoconsultation (n=14), and Web messaging or emails (n=12). Health care professionals were mainly therapists or cognitive behavioral therapists (n=10), physicians (n=8), and nurses (n=6). Studies were very heterogeneous in terms of outcomes. Interventions were mainly evaluated using satisfaction or acceptance, or outcomes relating to feasibility. Clinical outcomes were rarely used. The RCTs showed that digital clinical communication had no impact in comparison with standard care. Uncontrolled pre/post studies showed good rates of satisfaction or acceptance. Some economic studies suggested that digital clinical communication may save costs.

Conclusions: This rapid review showed an emerging body of literature on the use of digital clinical communication to improve families’ and caregivers’ involvement in the health management of children or young people. Further research with appropriate study designs and longer-term outcome measures should be encouraged.

Item Type: Journal Article
Subjects: R Medicine > R Medicine (General)
Divisions: Faculty of Medicine > Warwick Medical School > Health Sciences
Faculty of Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Communication in medicine, Medicine -- Communication systems, Patient-centered health care, Medical personnel and patient, Medical personnel-caregiver relationships, Child health services
Journal or Publication Title: Journal of Medical Internet Research
Publisher: J M I R Publications, Inc.
ISSN: 1438-8871
Official Date: 5 January 2018
Dates:
DateEvent
5 January 2018Published
4 November 2017Accepted
Volume: 20
Number: 1
Article Number: e5
DOI: 10.2196/jmir.7999
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Open Access
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
LYNC studyNational Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272

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