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Lived experiences of negative symptoms in first-episode psychosis : a qualitative secondary analysis

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Gee, Brioney, Hodgekins, Jo, Lavis, Anna, Notley, Caitlin, Birchwood, M. J., Everard, Linda, Freemantle, Nick, Jones, Peter B., Singh, Swaran P., Amos, Tim, Marshall, Max, Sharma, Vimal, Smith, Jo and Fowler, David (2019) Lived experiences of negative symptoms in first-episode psychosis : a qualitative secondary analysis. Early Intervention in Psychiatry, 13 (4). pp. 773-779. doi:10.1111/eip.12558 ISSN 1751-7893.

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Official URL: https://doi.org/10.1111/eip.12558

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Abstract

Aim

Exploring how negative symptoms are experienced and understood by individuals with lived experience of psychosis has the potential to offer insights into the complex psychosocial processes underlying negative symptom presentations. The aim of the current study was to investigate lived experiences of negative symptoms through secondary analysis of interviews conducted with individuals recovering from first-episode psychosis.

Method

Transcripts of in-depth interviews with participants (n = 24) recruited from Early Intervention in Psychosis services were analysed thematically with a focus on participants’ experiences and personal understandings of features corresponding to the negative symptoms construct.

Results

Descriptions of reductions in expression, motivation and sociability were common features of participants’ accounts. Several participants described the experience of having difficulty interacting as like being a ‘zombie’. Some participants experienced diminished capacity for emotion, thought or drive as underlying these experiences. However, participants typically attributed reductions in expression, motivation and sociability to medication side-effects, lack of confidence or active avoidance intended to protect them from rejection or ridicule, sometimes linked to internalised stigma.

Conclusions

Personal accounts of experiences of reduced expression, motivation and sociability during first-episode psychosis highlight the personal meaningfulness and role of agency is these features, challenging the framing of negative symptoms as passive manifestations of diminished capacity.

Item Type: Journal Article
Subjects: R Medicine > RC Internal medicine
Divisions: Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Mental Health and Wellbeing
Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School
Library of Congress Subject Headings (LCSH): Psychoses -- Patients -- Interviews, Psychoses -- Treatment
Journal or Publication Title: Early Intervention in Psychiatry
Publisher: Wiley-Blackwell Publishing Ltd.
ISSN: 1751-7893
Official Date: August 2019
Dates:
DateEvent
August 2019Published
24 March 2018Available
4 February 2018Accepted
Volume: 13
Number: 4
Page Range: pp. 773-779
DOI: 10.1111/eip.12558
Status: Peer Reviewed
Publication Status: Published
Access rights to Published version: Restricted or Subscription Access
Date of first compliant deposit: 6 February 2018
Date of first compliant Open Access: 24 March 2019
RIOXX Funder/Project Grant:
Project/Grant IDRIOXX Funder NameFunder ID
RP-PG-0109-10074[NIHR] National Institute for Health Researchhttp://dx.doi.org/10.13039/501100000272

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