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Implementing patient-reported outcome measures in clinical practice : a companion guide to the ISOQOL user’s guide
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Chan, Eric, Edwards, Todd, Haywood, Kirstie L., Milkes, Sean and Humphrey, Louise (2019) Implementing patient-reported outcome measures in clinical practice : a companion guide to the ISOQOL user’s guide. Quality of Life Research, 28 . pp. 621-627. doi:10.1007/s11136-018-2048-4 ISSN 0962-9343.
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Official URL: https://doi.org/10.1007/s11136-018-2048-4
Abstract
Purpose
The use of patient reported outcome (PRO) measures in clinical practice is increasing. Following the creation of a ‘User’s Guide to Implementing PRO Assessment in Clinical Practice’ by the International Society for Quality of Life Research (ISOQOL), volunteers from ISOQOL sought to create a Companion Guide to assist health care providers with the scientific and practical considerations involved in implementing and using PRO measures in clinical care by using information from real-world case studies. This paper summarizes the key issues presented in the Companion Guide.
Methods
Ten respondents who were members of the ISOQOL’s CP-SIG and worked in various clinical areas, participated in a survey or telephone interview. Participants were from Canada (n=2), Denmark (n=1), England (n=2), Holland (n=1) and the United States (n=4).
Results
Based on the information provided by respondents, a Companion Guide was produced, organized according to the nine questions presented in the User’s Guide. An additional section for key take-home messages was also provided. This guide provides examples of issues and considerations related to the implementation of PRO measures in clinical practice.
Conclusions
Respondents provided insight into their experiences and emphasized that PRO initiatives were likely to be more successful if there is purposeful, designed integration into clinical practice, meaningful substantive engagement with all stakeholders and access to necessary organizational resources. The ability to leverage existing technology as well as realistic and stakeholder consensus-driven expectations for planning and timing were also key to the successful implementation of PRO measures.
Item Type: | Journal Article | ||||||||
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Subjects: | R Medicine > R Medicine (General) | ||||||||
Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences > Warwick Research in Nursing |
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Library of Congress Subject Headings (LCSH): | Clinical medicine -- Standards, Hospital care, Patients, Quality of life | ||||||||
Journal or Publication Title: | Quality of Life Research | ||||||||
Publisher: | Springer Netherlands | ||||||||
ISSN: | 0962-9343 | ||||||||
Official Date: | 15 March 2019 | ||||||||
Dates: |
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Volume: | 28 | ||||||||
Page Range: | pp. 621-627 | ||||||||
DOI: | 10.1007/s11136-018-2048-4 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Reuse Statement (publisher, data, author rights): | This is a post-peer-review, pre-copyedit version of an article published in Quality of Life Research. The final authenticated version is available online at: http://dx.doi.org/10.1007/s11136-018-2048-4 | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Date of first compliant deposit: | 21 December 2018 | ||||||||
Date of first compliant Open Access: | 17 November 2019 | ||||||||
RIOXX Funder/Project Grant: |
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