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Caring as sharing : negotiating the moral boundaries of receiving care
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Andersen, R. S., MacArtney, John I., Rasmussen, B. M., Bernhardson, B. M., Hajdarevic, S., Malmström, M. and Ziebland, S. (2020) Caring as sharing : negotiating the moral boundaries of receiving care. Critical Public Health, 30 (5). 567-576 . doi:10.1080/09581596.2019.1623381 ISSN 1469-3682.
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Official URL: https://doi.org/10.1080/09581596.2019.1623381
Abstract
Informal caregiving is increasingly considered a health care delivery-resource within the North European welfare states. While ‘informal’ often refers to non-professional, ‘caregiving’ connotes both affective concern (caring about) and practical action (caring for). This duality of meanings, however, often refers to the one direction in which care is given. Care, we suggest, is relational and also requires that people receiving care are able to or wanting to share their needs. Informal caregiving thus requires sharing. Based on 155 semi-structured, narrative interviews with people with lung or bowel cancer, living in Denmark, Sweden or England, this paper explores how and with whom people ‘share’ when they fall ill. We approach sharing as a heuristic for reflecting on informal-caregiving, and illustrate how being cared for or asking for care are entangled with the management of social risks and notions of selfhood. We conclude that informal caregiving should explicitly be recognised as morally and sympathetically committed practices, which attend to the diversity of local moral worlds of patients, their needs and experiences.
Item Type: | Journal Article | ||||||||
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Journal or Publication Title: | Critical Public Health | ||||||||
Publisher: | Taylor & Francis | ||||||||
ISSN: | 1469-3682 | ||||||||
Official Date: | 2020 | ||||||||
Dates: |
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Volume: | 30 | ||||||||
Number: | 5 | ||||||||
Page Range: | 567-576 | ||||||||
DOI: | 10.1080/09581596.2019.1623381 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Reuse Statement (publisher, data, author rights): | “This is an Accepted Manuscript of an article published by Taylor & Francis in Critical Public Health on 11/06/2019, available online: http://www.tandfonline.com/10.1080/09581596.2019.1623381 | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Date of first compliant deposit: | 28 May 2019 | ||||||||
Date of first compliant Open Access: | 11 June 2020 | ||||||||
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