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Guidance for the treatment and management of COVID-19 amongst people with intellectual disabilities

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Alexander, Regi, Ravi, Ambiga, Barclay, Helene, Sawhney, Indermeet, Chester, Verity, Malcolm, Vicki, Brolly, Kate, Mukherji, Kamalika, Zia, Asif, Tharian, Reena, Howell, Andreana, Lane, Tadhgh, Cooper, Viv and Langdon, Peter E. (2020) Guidance for the treatment and management of COVID-19 amongst people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 17 (3). pp. 256-269. doi:10.1111/jppi.12352 ISSN 1741-1122.

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Official URL: https://doi.org/10.1111/jppi.12352

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Abstract

Issues: The current COVID-19 pandemic is a pressing world crisis and people with intellectual disabilities are vulnerable due to disparity in healthcare provision and physical and mental health multi-morbidity. Whilst most people will develop mild symptoms upon contracting SARS-CoV-2, some will develop serious complications. There are no current data about the impact of COVID-19 for people with intellectual disabilities.
Position: The aim of this paper is to present guidelines for the care and treatment of people with intellectual disabilities during the COVID-19 pandemic for both community teams providing care to people with intellectual disabilities and inpatient psychiatric settings. The guidelines cover specific issues associated with hospital passports, individual COVID-19 care plans, the important role of families and carers, capacity to make decisions, issues associated with social distancing, ceiling of care/treatment escalation plans, mental health and challenging behaviour, and caring for someone suspected of contracting or has contracted SARS-CoV-2 within community or inpatient psychiatric settings. We have proposed that the included conditions recommended by Public Health England to categorise someone as high risk of severe illness due to COVID-19 should also include mental health and challenging behaviour.
Conclusions: There are specific issues associated with providing care to people with intellectual disabilities and appropriate action must be taken by care providers to ensure that disparity of healthcare is addressed during the COVID-19 pandemic. We recognise that our guidance is focused upon healthcare delivery in England and invite others to augment our guidance for use in other jurisdictions.

Item Type: Journal Article
Subjects: B Philosophy. Psychology. Religion > BF Psychology
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Divisions: Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR)
Library of Congress Subject Headings (LCSH): Coronavirus infections -- Research, COVID-19 (Disease), Intellectual disability, Learning disabilities, Coronaviruses, SARS (Disease), Developmental disabilities -- Research
Journal or Publication Title: Journal of Policy and Practice in Intellectual Disabilities
Publisher: Wiley-Blackwell Publishing, Inc.
ISSN: 1741-1122
Official Date: September 2020
Dates:
DateEvent
September 2020Published
10 June 2020Available
14 May 2020Accepted
Volume: 17
Number: 3
Page Range: pp. 256-269
DOI: 10.1111/jppi.12352
Status: Peer Reviewed
Publication Status: Published
Reuse Statement (publisher, data, author rights): "This is the peer reviewed version of the following article: [FULL CITE], which has been published in final form at [Link to final article using the DOI]. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions."
Access rights to Published version: Open Access (Creative Commons)
Date of first compliant deposit: 14 May 2020
Date of first compliant Open Access: 15 June 2020
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