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“It’s not a scientific number it’s just a feeling” : populating a multi-dimensional end-of-life decision framework using deliberative methods
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Coast, Joanna, Bailey, Cara, Canaway, Alastair and Kinghorn, Philip (2021) “It’s not a scientific number it’s just a feeling” : populating a multi-dimensional end-of-life decision framework using deliberative methods. Health Economics, 30 (5). pp. 1033-1049. doi:10.1002/hec.4239 ISSN 1057-9230.
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WRAP-it’s-not-scientific-number-it’s-just-feeling-populating-multi-dimensional-end-of-life-decision-framework-using-deliberative-methods-Canaway-2021.pdf - Accepted Version Embargoed item. Restricted access to Repository staff only - Requires a PDF viewer. Download (1079Kb) |
Official URL: http://dx.doi.org/10.1002/hec.4239
Abstract
The capability approach is potentially valuable for economic evaluation at the end of life because of its conceptualisation of wellbeing as freedom and the potential for capturing outcomes for those at end of life and those close to persons at the end of life. For decision making, however, this information needs to be integrated into current evaluation paradigms. This research explored weights for an integrated economic evaluation framework using a deliberative approach. Twelve focus groups were held (38 members of the public, 29 ‘policy makers’, 7 hospice volunteers); budget pie tasks were completed to generate weights. Constant comparison was used to analyse qualitative data, exploring principles behind individuals’ weightings. Average weights elicited from members of the general population and policy makers for the importance that should be given to close persons (versus patients) were very similar, at around 30%. A ‘sliding scale’ of weights between health gain and the capability for a good death resulted from the policy maker and volunteer groups, with increasing weight given to the capability for a good death as the trajectory got closer to death. These weights can be used in developing a more comprehensive framework for economic evaluation at end of life.
Item Type: | Journal Article | |||||||||
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Subjects: | R Medicine > RA Public aspects of medicine R Medicine > RT Nursing |
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Clinical Trials Unit Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Library of Congress Subject Headings (LCSH): | Terminal care, Medical economics, Pain -- Treatment, Capabilities approach (Social sciences) | |||||||||
Journal or Publication Title: | Health Economics | |||||||||
Publisher: | John Wiley & Sons Ltd. | |||||||||
ISSN: | 1057-9230 | |||||||||
Official Date: | May 2021 | |||||||||
Dates: |
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Volume: | 30 | |||||||||
Number: | 5 | |||||||||
Page Range: | pp. 1033-1049 | |||||||||
DOI: | 10.1002/hec.4239 | |||||||||
Status: | Peer Reviewed | |||||||||
Publication Status: | Published | |||||||||
Access rights to Published version: | Open Access (Creative Commons) | |||||||||
Date of first compliant deposit: | 3 February 2021 | |||||||||
Date of first compliant Open Access: | 17 March 2021 | |||||||||
RIOXX Funder/Project Grant: |
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