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The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period
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Rogers, Gemma, Perez‐Olivas, Gisela, Stenfert Kroese, Biza, Patel, Varsha, Murphy, Glynis H., Rose, John L., Cooper, Vivien, Langdon, Peter E., Hiles, Steve, Clifford, Clair and Willner, Paul (2021) The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. Journal of Applied Research in Intellectual Disabilities, 34 (6). pp. 1421-1430. doi:10.1111/jar.12884 ISSN 1468-3148.
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WRAP-experiences-mothers-children-young-people-intellectual-disabilities-during-first-COVID‐19-lockdown-period-Langdon-2021.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution 4.0. Download (435Kb) | Preview |
Official URL: http://dx.doi.org/10.1111/jar.12884
Abstract
Background:
Recent COVID‐19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim:
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods:
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results:
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions:
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well‐being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
| Item Type: | Journal Article | ||||||||
|---|---|---|---|---|---|---|---|---|---|
| Subjects: | H Social Sciences > HQ The family. Marriage. Woman H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine R Medicine > RJ Pediatrics |
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| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| Library of Congress Subject Headings (LCSH): | COVID-19 Pandemic, 2020- , COVID-19 Pandemic, 2020- -- Social aspects, Intellectual disability , Youth with mental disabilities , Youth with mental disabilities -- Care, Children with mental disabilities , Children with mental disabilities -- Care, Parents of children with mental disabilities | ||||||||
| Journal or Publication Title: | Journal of Applied Research in Intellectual Disabilities | ||||||||
| Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||
| ISSN: | 1468-3148 | ||||||||
| Official Date: | November 2021 | ||||||||
| Dates: |
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| Volume: | 34 | ||||||||
| Number: | 6 | ||||||||
| Page Range: | pp. 1421-1430 | ||||||||
| DOI: | 10.1111/jar.12884 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Date of first compliant deposit: | 25 March 2021 | ||||||||
| Date of first compliant Open Access: | 26 March 2021 |
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