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The unique information and communication needs of men affected by prostate cancer : a qualitative study of men's experience
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Chen, Hong, Twiddy, Maureen, Jones, Lesley and Johnson, Miriam J. (2021) The unique information and communication needs of men affected by prostate cancer : a qualitative study of men's experience. European Journal of Cancer Care, 30 (6). e13503. doi:10.1111/ecc.13503 ISSN 0961-5423.
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Official URL: http://dx.doi.org/10.1111/ecc.13503
Abstract
Objective:
The objective of this study is to explore the specific information and communication needs of men affected by prostate cancer to inform the development of educational materials for clinicians.
Methods:
This is a qualitative descriptive study. A purposive sampling strategy was used to identify men at different cancer stages and with experience of different treatment regimens. Semistructured interviews (25) were conducted with 19 men and six carers over the phone. Interview data were analysed using a framework approach.
Results:
Four themes emerged: gaps in the information provided by secondary care doctors and nurses, communication skills needed in effective clinical information provision, a need for individualised information and alternative information sources used to meet unmet needs. Regardless of cancer stage and treatment, men with prostate cancer and their carers found information regarding common and burdensome adverse effects of prostate cancer treatment particularly lacking, and their ongoing and changing information needs often overlooked. They needed information delivered in a compassionate and individually tailored manner, considering content, timing and emotional support within the context of their unique life circumstances.
Conclusion:
Clinicians often fail to recognise the need for or deliver patient-centred conversations about treatment, managing side effects and prognosis. The findings will be used to develop clinician-facing educational materials.
Item Type: | Journal Article | |||||||||
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Subjects: | R Medicine > RC Internal medicine | |||||||||
Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Health Sciences Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Library of Congress Subject Headings (LCSH): | Prostate -- Cancer -- Etiology, Prostate -- Cancer -- Diagnosis, Prostate -- Cancer -- Risk factors, Prostate -- Cancer -- Susceptibility, Prostate -- Cancer -- Treatment, Prostate -- Cancer -- Patients, Prostate -- Cancer -- Information services | |||||||||
Journal or Publication Title: | European Journal of Cancer Care | |||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | |||||||||
ISSN: | 0961-5423 | |||||||||
Official Date: | November 2021 | |||||||||
Dates: |
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Volume: | 30 | |||||||||
Number: | 6 | |||||||||
Article Number: | e13503 | |||||||||
DOI: | 10.1111/ecc.13503 | |||||||||
Status: | Peer Reviewed | |||||||||
Publication Status: | Published | |||||||||
Reuse Statement (publisher, data, author rights): | This is the peer reviewed version of the following article: Chen, H., Twiddy, M., Jones, L., & Johnson, M. J. (2021). The unique information and communication needs of men affected by prostate cancer: A qualitative study of men's experience. European Journal of Cancer Care, e13503., which has been published in final form at https://doi.org/10.1111/ecc.13503 . This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions | |||||||||
Access rights to Published version: | Restricted or Subscription Access | |||||||||
Date of first compliant deposit: | 20 October 2021 | |||||||||
Date of first compliant Open Access: | 21 September 2022 | |||||||||
RIOXX Funder/Project Grant: |
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