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Barriers and enablers to consumer and community involvement in research and healthcare improvement : perspectives from consumer organisations, health services and researchers in Melbourne, Australia
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Ayton, Darshini, Braaf, Sandra, Jones, Angela, Teede, Helena, Gardam, Madeleine, Bergmeier, Heidi and Skouteris, Helen (2022) Barriers and enablers to consumer and community involvement in research and healthcare improvement : perspectives from consumer organisations, health services and researchers in Melbourne, Australia. Health & Social Care in the Community, 30 (4). doi:10.1111/hsc.13515 ISSN 0966-0410.
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Official URL: http://dx.doi.org/10.1111/hsc.13515
Abstract
Partnering with consumers and patients and the community and public is a research and healthcare improvement imperative. Consumer and community involvement (CCI) requires behaviour change at the individual (researcher, health professional, manager), organisational (health service, university, medical research institute) and system level (funding policies, collaboration between organisations). To understand the barriers and enablers to meaningful CCI, a qualitative descriptive study was undertaken with researchers, health professionals, representatives from consumer organisations, and health services and ethics committees in Melbourne, Australia. Twenty-eight semi-structured interviews and one focus group were conducted in May–August 2019. Ethics approval was obtained. Thematic analysis was guided by the Capability, Opportunity and Motivation and Behaviour model (COM-B). Training of researchers and health professionals in CCI, benefits and systems and processes to undertake CCI, alongside incorporating CCI as a requirement for funding were identified as enablers. Lack of time and resources for CCI, challenges in finding consumers for projects and a perceived lack of evidence of the impact of CCI were barriers. These identified barriers and enablers will inform strategies to build the capacity of CCI at the individual, organisation and system level within the Australian Health Research Alliance.
Item Type: | Journal Article | ||||||||||
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Subjects: | R Medicine > R Medicine (General) R Medicine > RA Public aspects of medicine |
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Divisions: | Faculty of Social Sciences > Warwick Business School | ||||||||||
Library of Congress Subject Headings (LCSH): | Medical care -- Research -- Australia -- Melbourne -- Citizen participation., Public health -- Research -- Australia -- Melbourne -- Citizen participation., Patient participation -- Australia -- Melbourne , Evidence-based medicine -- Australia -- Melbourne | ||||||||||
Journal or Publication Title: | Health & Social Care in the Community | ||||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||||
ISSN: | 0966-0410 | ||||||||||
Official Date: | July 2022 | ||||||||||
Dates: |
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Volume: | 30 | ||||||||||
Number: | 4 | ||||||||||
DOI: | 10.1111/hsc.13515 | ||||||||||
Status: | Peer Reviewed | ||||||||||
Publication Status: | Published | ||||||||||
Reuse Statement (publisher, data, author rights): | This is the peer reviewed version of the following article: Ayton, D., Braaf, S., Jones, A., Teede, H., Gardam, M., Bergmeier, H., & Skouteris, H. (2022). Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services and researchers in Melbourne, Australia. Health & Social Care in the Community, 30, e1078– e1091., which has been published in final form at: https://doi.org/10.1111/hsc.13515. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited. | ||||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||||
Copyright Holders: | John Wiley & Sons Ltd | ||||||||||
Date of first compliant deposit: | 18 August 2022 | ||||||||||
Date of first compliant Open Access: | 18 August 2022 | ||||||||||
RIOXX Funder/Project Grant: |
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