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Family theories and siblings of people with intellectual and developmental disabilities
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Hayden, Nikita and Hastings, R. P. (2022) Family theories and siblings of people with intellectual and developmental disabilities. International Review of Research in Developmental Disabilities, 63 . pp. 1-49. doi:10.1016/bs.irrdd.2022.09.001 ISSN 2211-6095.
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Official URL: https://doi.org/10.1016/bs.irrdd.2022.09.001
Abstract
Family theories have been used in intellectual and developmental disability (IDD) research as a legitimizing tool for focusing on non-disabled siblings. Although there is value in understanding siblings’ outcomes, family theories have utility beyond this narrow scope. This chapter will draw on social learning theory, embedded family systems theories, the Double ABCX model, lifespan and developmental perspectives, and post-structuralist perspectives, to examine how these theories can be used to understand siblings’ experiences, family relationships, and outcomes. For example, these theoretical ideas enable us to further our understanding of the wider and more interactive factors related to siblings’ psychological, social, familial, community, and societal outcomes, as well as relationships. These theories highlight the need for analyses that include the whole family system and that move beyond simple main effects to include interacting factors, and beyond unidirectional effects to bidirectional effects. Clarifying a broad array of factors that may explain sibling outcomes may help us to consider what covariates to include in statistical models. This chapter will also consider how family theories can help us to consider methodological and epistemological challenges related to sibling IDD research. For example, although these family theories are often described as dynamic, the transient and heuristic nature of capturing any perspective—about a theory, model, or from a research participant—ultimately reinforces how vast and unknowable individual and family experiences are. These family theories also have utility as a self-reflexive tool to consider researcher positionality. Family systems perspectives emphasize the insider-outsider boundary in family systems. Researchers must navigate, respect, and ultimately accept this boundary when researching families and siblings that are not their own.
Item Type: | Journal Article | ||||||||
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Subjects: | H Social Sciences > HQ The family. Marriage. Woman H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
Library of Congress Subject Headings (LCSH): | Intellectual disability, Developmental disabilities, Autism, Autistic children -- Family relationships, Families, Siblings, System theory, System analysis | ||||||||
Series Name: | International Review of Research in Developmental Disabilities | ||||||||
Journal or Publication Title: | International Review of Research in Developmental Disabilities | ||||||||
Publisher: | Elsevier | ||||||||
ISSN: | 2211-6095 | ||||||||
Book Title: | International Review of Research in Developmental Disabilities | ||||||||
Official Date: | 2022 | ||||||||
Dates: |
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Volume: | 63 | ||||||||
Page Range: | pp. 1-49 | ||||||||
DOI: | 10.1016/bs.irrdd.2022.09.001 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Copyright Holders: | Copyright © 2022 Elsevier Inc. All rights reserved. | ||||||||
Description: | Book series |
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Date of first compliant deposit: | 18 October 2022 | ||||||||
Date of first compliant Open Access: | 18 October 2023 | ||||||||
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