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Are families supported to come to terms with an autism diagnosis? A service evaluation of referrals to family therapy for young people with autism in one NHS trust
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Burton, Lauren and Fox, Claudine (2023) Are families supported to come to terms with an autism diagnosis? A service evaluation of referrals to family therapy for young people with autism in one NHS trust. Journal of Family Therapy, 45 (2). pp. 154-166. doi:10.1111/1467-6427.12419 ISSN 0163-4445.
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Official URL: https://doi.org/10.1111/1467-6427.12419
Abstract
Young people with autism are increasingly being referred for family therapy (FT) owing to impaired family functioning, but few studies have investigated the support families receive following a diagnosis through specific NHS Trusts. This study examined (1) the proportion of autism cases referred for FT in one Trust and (2) the post-diagnostic support families received. Participants (n = 144; 9.5–19.3 years) were FT referrals between 2019–2020. Autism diagnostic status and the support families received from FT, from the neurodevelopmental (ND) service which specialises in autism, and for co-occurring conditions [e.g., cognitive behavioural therapy (CBT)] was extracted retrospectively from routine data. Forty FT referrals met autism criteria: several families did not receive FT; few were provided with support from the ND service; and if CBT was offered, no adaptations for autism were noted. Families received insufficient support following a diagnosis through this Trust. Implications include improving post-diagnostic support for families in practice.
Item Type: | Journal Article | ||||||||
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Subjects: | H Social Sciences > HQ The family. Marriage. Woman R Medicine > RC Internal medicine R Medicine > RJ Pediatrics |
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Divisions: | Faculty of Science, Engineering and Medicine > Science > Psychology | ||||||||
Library of Congress Subject Headings (LCSH): | Autism , Autism in adolescence , Autistic youth , Autistic youth -- Services for , Autistic youth -- Family relationships, Family psychotherapy, Parents of autistic children | ||||||||
Journal or Publication Title: | Journal of Family Therapy | ||||||||
Publisher: | Wiley-Blackwell Publishing Ltd. | ||||||||
ISSN: | 0163-4445 | ||||||||
Official Date: | May 2023 | ||||||||
Dates: |
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Volume: | 45 | ||||||||
Number: | 2 | ||||||||
Page Range: | pp. 154-166 | ||||||||
DOI: | 10.1111/1467-6427.12419 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||||
Date of first compliant deposit: | 21 October 2022 | ||||||||
Date of first compliant Open Access: | 21 October 2022 | ||||||||
RIOXX Funder/Project Grant: |
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