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A realist review of programs for siblings of children who have an intellectual/developmental disability
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Marquis, Sandra, O'Leary, Renee, Hayden, Nikita K. and Baumbusch, Jennifer (2022) A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations . doi:10.1111/fare.12789 ISSN 1741-3729.
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Official URL: https://doi.org/10.1111/fare.12789
Abstract
Objective
Our purpose is to answer the following question: What mechanisms or components of programs, groups, or interventions improve psychological and social aspects of the lives of siblings of children who have intellectual/developmental disabilities (IDD)? Secondly, using a realist review format, we develop program theories and recommendations that can guide current and future sibling support programs.
Background
There is evidence that having a sibling with IDD can affect the physical health, behavior, and mental health of siblings who do not have IDD. As a result, support programs have been developed for these nondisabled siblings.
Methods
We conducted a realist review of 31 studies assessing support programs for siblings of children with IDD. Gray literature was also included. Applying the realist paradigm, we identified program contexts, mechanisms that promote program effectiveness, and the outcomes of the programs.
Results
We found that contextual information was often lacking in the research and no studies examined the effectiveness of individual program components. However, the mechanisms of validation of feelings and experiences, time with parents, and respite were observed as beneficial for the siblings. From our analysis and using a realist review paradigm, we developed four program theories that reflect the siblings' experiences in the various programs.
Conclusion
The four program theories derived from this realist review can be summarized as “I am not the only one,” “I have needs too,” “I need my parents' attention,” and “I need a break.”
Implications
Based upon the four theories, we offer recommendations to guide program development.
Item Type: | Journal Article | ||||||||
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Subjects: | H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RC Internal medicine |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
SWORD Depositor: | Library Publications Router | ||||||||
Library of Congress Subject Headings (LCSH): | Siblings of children with disabilities, Siblings of people with disabilities, People with mental disabilities -- Services for | ||||||||
Journal or Publication Title: | Family Relations | ||||||||
Publisher: | Wiley-Blackwell Publishing, Inc. | ||||||||
ISSN: | 1741-3729 | ||||||||
Official Date: | 2022 | ||||||||
Dates: |
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Number of Pages: | 20 | ||||||||
DOI: | 10.1111/fare.12789 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Reuse Statement (publisher, data, author rights): | This is the peer reviewed version of the following article: Marquis, S., O'Leary, R., Hayden, N. K., & Baumbusch, J. (2022). A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations, 1– 20. https://doi.org/10.1111/fare.12789, which has been published in final form at https://doi.org/10.1111/fare.12789. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Copyright Holders: | National Council on Family Relations | ||||||||
Date of first compliant deposit: | 8 November 2022 | ||||||||
Date of first compliant Open Access: | 22 October 2023 | ||||||||
RIOXX Funder/Project Grant: |
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