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A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities : how are co‐researchers involved and what are their experiences?
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Hewitt, Olivia Mary, Langdon, Peter E., Tapp, Katherine and Larkin, Michael (2023) A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities : how are co‐researchers involved and what are their experiences? Journal of Applied Research in Intellectual Disabilities, 36 (4). pp. 681-701. doi:10.1111/jar.13100 ISSN 1468-3148.
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Research Intellect Disabil - 2023 - Hewitt - A systematic review and narrative synthesis of inclusive health and social.pdf - Published Version - Requires a PDF viewer. Available under License Creative Commons Attribution 4.0. Download (1904Kb) | Preview |
Official URL: https://doi.org/10.1111/jar.13100
Abstract
Background: Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive research methodologies, systematically appraises the involvement of researchers with intellectual disabilities, and identifies facilitators and barriers to inclusive research. Researchers' experiences of engaging with inclusive research are synthesised. Method: Seventeen empirical studies focused upon inclusive health and social care research were identified. The associated inclusive research methodologies employed, and the stages in which researchers with intellectual disabilities were involved, along with the experiences of researchers with and without intellectual disabilities were synthesised. Results: Papers focused on a broad range of health and social care topics and largely employed qualitative or mixed‐methods designs. Researchers with intellectual disabilities were frequently involved with data collection, analysis and dissemination. Facilitators of inclusive research comprised sharing power, team working, having sufficient resources and making research methodologies accessible. Conclusions: Researchers with intellectual disabilities are involved in a wide range of methodologies and research tasks. How the added value of inclusive research is measured and its impact on outcomes, require consideration.
| Item Type: | Journal Article | ||||||||
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| Subjects: | R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine |
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| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
| SWORD Depositor: | Library Publications Router | ||||||||
| Library of Congress Subject Headings (LCSH): | Intellectual disability, People with mental disabilities, Intellectual disability -- Research, Quantitative research -- Methodology, Medical care -- Research -- Methodology, Social service -- Research -- Methodology, Participant observation, Research -- Social aspects | ||||||||
| Journal or Publication Title: | Journal of Applied Research in Intellectual Disabilities | ||||||||
| Publisher: | Wiley-Blackwell Publishing, Inc. | ||||||||
| ISSN: | 1468-3148 | ||||||||
| Official Date: | July 2023 | ||||||||
| Dates: |
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| Volume: | 36 | ||||||||
| Number: | 4 | ||||||||
| Page Range: | pp. 681-701 | ||||||||
| DOI: | 10.1111/jar.13100 | ||||||||
| Status: | Peer Reviewed | ||||||||
| Publication Status: | Published | ||||||||
| Access rights to Published version: | Open Access (Creative Commons) | ||||||||
| Copyright Holders: | © 2023 The Authors. Journal of Applied Research in Intellectual Disabilities published by John Wiley & Sons Ltd. | ||||||||
| Date of first compliant deposit: | 3 April 2023 | ||||||||
| Date of first compliant Open Access: | 4 April 2023 | ||||||||
| RIOXX Funder/Project Grant: |
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