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Investigating the sustainability of self-help programmes in the context of leprosy and the work of leprosy missions in Nigeria, Nepal and India : a qualitative study protocol
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Choudhury, Sopna, Ilozumba, Onaedo, Darlong, Joydeepa, Govindasamy, Karthikeyan, Tsaku, Paul A., Udo, Sunday, Shrestha, Dilip, Napit, Indra B., Ugwu, Linda, Meka, Anthony, Sartori, Jo, Griffiths, Frances and Lilford, Richard J. (2023) Investigating the sustainability of self-help programmes in the context of leprosy and the work of leprosy missions in Nigeria, Nepal and India : a qualitative study protocol. BMJ Open, 13 (5). e070604. doi:10.1136/bmjopen-2022-070604 ISSN 2044-6055.
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Official URL: https://doi.org/10.1136/bmjopen-2022-070604
Abstract
Leprosy occurs among very poor people who may be stigmatised and pushed further to the margins of society. Programmes to improve social integration and stimulate economic development have been implemented to help break the vicious cycle of poverty, reduced quality of life and ulcer recurrence. These involve forming groups of people, with a common concern, to provide mutual support and form saving syndicates-hence the term 'self-help groups' (SHGs). While there is literature on the existence and effectiveness of SHGs during the funded periods, little is known about their sustainability. We aim to explore the extent to which SHG programme activities have continued beyond the funding period and record evidence of sustained benefits. In India, Nepal and Nigeria, we identified programmes funded by international non-governmental organisations, primarily aimed at people affected by leprosy. In each case, financial and technical support was allocated for a predetermined period (up to 5 years).We will review documents, including project reports and meeting minutes, and conduct semistructured interviews with people involved in delivery of the SHG programme, potential beneficiaries and people in the wider environment who may have been familiar with the programme. These interviews will gauge participant and community perceptions of the programmes and barriers and facilitators to sustainability. Data will be analysed thematically and compared across four study sites. Approval was obtained from the University of Birmingham Biomedical and Scientific Research Ethics Committee. Local approval was obtained from: The Leprosy Mission Trust India Ethics Committee; Federal Capital Territory Health Research Ethics Committee in Nigeria and the Health Research Ethics Committee of Niger State Ministry of Health; University of Nigeria Teaching Hospital and the Nepal Health and Research Council. Results will be disseminated via peer-reviewed journals, conference presentations and community engagement events through the leprosy missions. [Abstract copyright: © Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.]
Item Type: | Journal Article | |||||||||
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Subjects: | R Medicine > RA Public aspects of medicine | |||||||||
Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School | |||||||||
SWORD Depositor: | Library Publications Router | |||||||||
Library of Congress Subject Headings (LCSH): | Leprosy, Stigma (Social psychology), Leprosy -- Treatment, Leprosy -- Prevention, Leprosy -- Epidemiology, Self-help groups, Self-care, Health | |||||||||
Journal or Publication Title: | BMJ Open | |||||||||
Publisher: | BMJ | |||||||||
ISSN: | 2044-6055 | |||||||||
Official Date: | 16 May 2023 | |||||||||
Dates: |
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Volume: | 13 | |||||||||
Number: | 5 | |||||||||
Article Number: | e070604 | |||||||||
DOI: | 10.1136/bmjopen-2022-070604 | |||||||||
Status: | Peer Reviewed | |||||||||
Publication Status: | Published | |||||||||
Access rights to Published version: | Open Access (Creative Commons) | |||||||||
Date of first compliant deposit: | 1 June 2023 | |||||||||
Date of first compliant Open Access: | 1 June 2023 | |||||||||
RIOXX Funder/Project Grant: |
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