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Stakeholder perspectives on intensive support teams for adults with intellectual disabilities who display behaviour that challenges in England
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Kouroupa, Athanasia, Hassiotis, Angela, Hamza, Leila, Courtenay, Ken, Hall, Ian, Langdon, Peter E., Taggart, Laurence, Crossey, Vicky, Lloyd‐Evans, Brynmor and Morant, Nicola (2023) Stakeholder perspectives on intensive support teams for adults with intellectual disabilities who display behaviour that challenges in England. Journal of Applied Research in Intellectual Disabilities, 36 (5). pp. 1101-1112. doi:10.1111/jar.13129 ISSN 1468-3148.
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Official URL: http://doi.org/10.1111/jar.13129
Abstract
Background
Adults with intellectual disabilities often display behaviour that challenges that is a result of biological differences, psychological challenges, and lack of appropriate social support. Intensive Support Teams (IST) are recommended to support the care needs of this group and avoid hospitalisation. However, little attention has been paid to the perspectives of stakeholders who manage, work in, or use ISTs.
Method
Interviews and focus groups were conducted with 50 stakeholders (IST service managers and professionals, adults with intellectual disabilities, and family and paid carers) of ISTs. Services operated according to one of two service models previously identified in ISTs in England (enhanced or independent).
Results
Thematic analysis identified accessible and flexible support, individualised care, and the involvement of carers and other relevant agencies in management plans and reviews as features of good IST care highlighted by all stakeholder groups. IST managers and professionals described the key challenges of current IST provision as unclear referral criteria, limited interfaces with other local services, and perceived threats associated with funding and staff retention. Findings were similar between the two IST models.
Conclusions
ISTs are able to offer care and specialist support that is valued by families, service users and other care providers. However, they face several operational challenges that should be addressed if ISTs are to reach their potential along with community intellectual disability services in supporting adults with intellectual disabilities who display behaviour that challenges in the community.
Item Type: | Journal Article | ||||||||
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Subjects: | R Medicine > RA Public aspects of medicine R Medicine > RC Internal medicine |
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
SWORD Depositor: | Library Publications Router | ||||||||
Library of Congress Subject Headings (LCSH): | Intellectual disability , People with mental disabilities, People with mental disabilities -- Care, People with mental disabilities -- Services for , Mentally ill , Mentally ill -- Care , People with mental disabilities -- Behavior modification | ||||||||
Journal or Publication Title: | Journal of Applied Research in Intellectual Disabilities | ||||||||
Publisher: | Blackwell Publishing Ltd | ||||||||
ISSN: | 1468-3148 | ||||||||
Official Date: | September 2023 | ||||||||
Dates: |
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Volume: | 36 | ||||||||
Number: | 5 | ||||||||
Page Range: | pp. 1101-1112 | ||||||||
DOI: | 10.1111/jar.13129 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||||
Date of first compliant deposit: | 7 June 2023 | ||||||||
Date of first compliant Open Access: | 7 June 2023 | ||||||||
RIOXX Funder/Project Grant: |
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