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Family-systems interventions for families of people with an intellectual disability or who are autistic : a systematic review
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Sutherland, Daniel, Flynn, Samantha, Kurzeja, Olivia, Griffin, Joanna and Hastings, Richard P. (2023) Family-systems interventions for families of people with an intellectual disability or who are autistic : a systematic review. Journal of Intellectual Disability Research . doi:10.1111/jir.13068 ISSN 0964-2633. (In Press)
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Official URL: http://doi.org/10.1111/jir.13068
Abstract
Background
Family-systems interventions have been proposed as one way of supporting families of people with an intellectual disability (ID) or who are autistic. This systematic review aimed to summarise what family-systems interventions have been studied with this population, what evidence there is for their effectiveness and families' experiences of the interventions.
Methods
The review was preregistered on PROSPERO (CRD42022297516). We searched five electronic databases, identified 6908 records and screened 72 full texts. Study quality was evaluated using the Mixed Methods Appraisal Tool, and a narrative synthesis was used.
Results
We identified 13 eligible articles with 292 participating families. Most studies reported positive effects of the interventions on wellbeing and family relationships, and families reported positive experiences. However, research quality was poor and there are no any sufficiently powered randomised controlled trials demonstrating family-systems interventions' effectiveness for this population.
Conclusions
There is a need for higher-quality research to establish whether family-systems interventions are beneficial for families of people who have an ID or who are autistic.
| Item Type: | Journal Article | |||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| Subjects: | H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RC Internal medicine R Medicine > RJ Pediatrics |
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| Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | |||||||||
| Library of Congress Subject Headings (LCSH): | Intellectual disability , Children with mental disabilities, Parents of children with mental disabilities -- Services for, Autism , Autism in children, Autistic children, Parents of autistic children -- Services for, Parents of autistic children -- Psychology, Family psychotherapy, Systemic therapy (Family therapy) | |||||||||
| Journal or Publication Title: | Journal of Intellectual Disability Research | |||||||||
| Publisher: | Wiley | |||||||||
| ISSN: | 0964-2633 | |||||||||
| Official Date: | 2023 | |||||||||
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| DOI: | 10.1111/jir.13068 | |||||||||
| Status: | Peer Reviewed | |||||||||
| Publication Status: | In Press | |||||||||
| Access rights to Published version: | Restricted or Subscription Access | |||||||||
| Copyright Holders: | © 2023 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd. | |||||||||
| Date of first compliant deposit: | 7 July 2023 | |||||||||
| Date of first compliant Open Access: | 3 August 2023 | |||||||||
| RIOXX Funder/Project Grant: |
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