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Psychological distress and convergence of own and proxy health‐related quality of life in carers of adults with an intellectual disability
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Rudra, S., Ali, A., Powell, J. M., Hastings, Richard P. and Totsika, Vasiliki (2024) Psychological distress and convergence of own and proxy health‐related quality of life in carers of adults with an intellectual disability. Journal of Intellectual Disability Research, 68 (1). pp. 74-83. e13088. doi:10.1111/jir.13088 ISSN 1365-2788.
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Official URL: https://doi.org/10.1111/jir.13088
Abstract
BackgroundIn adults with an intellectual disability, health‐related quality of life (HRQoL) is often measured by proxy report. This cross‐sectional study investigated whether the mental health of proxy raters impacts the way they rate HRQoL.MethodsIn this study, 110 carers of adults with an intellectual disability completed measures of psychological distress (Kessler‐6) and HRQoL (EQ‐5D‐3L) about their own HRQoL and that of the care recipient. Differences between HRQoL scores as rated by the carer about themselves and the care recipient were calculated (convergence scores) and multiple regression models were fitted to estimate the association between proxy psychological distress and convergence scores for subjective/objective HRQoL controlling for support needs of the care recipient, carer age and gender of care recipient.ResultsThere was a significant association between psychological distress and subjective HRQoL convergence scores (r = .92; P = 0.03; 95%; CI: −1.76 to −0.09). There was no association between psychological distress and objective HRQoL convergence scores (r = .01; CI −0.02 to 0.001; P = 0.08). The association between psychological distress and HRQoL scores was no longer present when models did not include convergence scores.ConclusionsCarers experiencing more psychological distress tended to rate their own and the care recipients' subjective HRQoL more similarly. Objective HRQoL measures did not show this convergence in scores with increasing carer psychological distress. Findings differed when the analysis approach was changed, suggesting the results above require replication in future studies.
Item Type: | Journal Article | ||||||||
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Divisions: | Faculty of Social Sciences > Centre for Educational Development, Appraisal and Research (CEDAR) | ||||||||
SWORD Depositor: | Library Publications Router | ||||||||
Journal or Publication Title: | Journal of Intellectual Disability Research | ||||||||
Publisher: | Wiley | ||||||||
ISSN: | 1365-2788 | ||||||||
Official Date: | January 2024 | ||||||||
Dates: |
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Volume: | 68 | ||||||||
Number: | 1 | ||||||||
Page Range: | pp. 74-83 | ||||||||
Article Number: | e13088 | ||||||||
DOI: | 10.1111/jir.13088 | ||||||||
Status: | Peer Reviewed | ||||||||
Publication Status: | Published | ||||||||
Access rights to Published version: | Restricted or Subscription Access | ||||||||
Copyright Holders: | © 2023 MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd. | ||||||||
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