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Perspectives of informal caregivers who support people following hip fracture surgery : a qualitative study embedded within the HIP HELPER feasibility trial
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Welsh, A., Hanson, S., Pfeiffer, K., Khoury, R., Clark, A., Ashford, P-A., Hopewell, S., Logan, P. A., Crotty, M., Costa, M. L., Lamb, S. E. and Smith, Toby O. (2023) Perspectives of informal caregivers who support people following hip fracture surgery : a qualitative study embedded within the HIP HELPER feasibility trial. BMJ Open, 13 (11). e074095. doi:10.1136/bmjopen-2023-074095 ISSN 2044-6055.
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Official URL: https://doi.org/10.1136/bmjopen-2023-074095
Abstract
Objectives: To illuminate the perspectives of informal caregivers who support people following hip fracture surgery.
Design: A qualitative study embedded within a now completed multi-centre, feasibility randomised controlled trial (HIPHELPER).
Setting: Five English National Health Service (NHS) hospitals. Participants: We interviewed 20 participants (10 informal caregivers; 10 people with hip fracture), following hip fracture surgery. This included one male and nine females who experienced a hip fracture; and seven male and three female informal caregivers. The median age was 72.5 years (range: 65 to 96 years), 71.0 years (range: 43 to 81 years) for people with hip fracture and informal caregivers, respectively.
Methods: Semi-structured, virtual interviews were undertaken between November 2021 and March 2022, with caregiver dyads (person with hip fracture and their informal caregiver). Data were analysed thematically.
Findings: We identified two main themes: expectations of the informal caregiver role, and reality of being an informal caregiver; and sub-themes: expectations of care and services; responsibility and advocacy; profile of people with hip fracture; decision to be a caregiver; transition from hospital to home.
Conclusion: Findings suggest informal caregivers do not feel empowered to advocate for a person’s recovery or navigate the care system, leading to increased and unnecessary stress, anxiety and frustration when supporting the person with hip fracture. We suggest that a tailored information- giving on the recovery pathway, which is responsive to the caregiving population (i.e., considering the needs of male, younger, and more active informal caregivers and people with hip fracture) would smooth the transition from hospital to home.
Item Type: | Journal Article | ||||||||||||
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Subjects: | H Social Sciences > HV Social pathology. Social and public welfare R Medicine > RA Public aspects of medicine R Medicine > RD Surgery |
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Divisions: | Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School > Clinical Trials Unit Faculty of Science, Engineering and Medicine > Medicine > Warwick Medical School |
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Library of Congress Subject Headings (LCSH): | Caregivers , Hip joint -- Fractures -- Patients -- Rehabilitation, Hip joint -- Surgery, Hip joint -- Fractures -- Patients -- Homecare | ||||||||||||
Journal or Publication Title: | BMJ Open | ||||||||||||
Publisher: | BMJ | ||||||||||||
ISSN: | 2044-6055 | ||||||||||||
Official Date: | 2023 | ||||||||||||
Dates: |
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Volume: | 13 | ||||||||||||
Number: | 11 | ||||||||||||
Article Number: | e074095 | ||||||||||||
DOI: | 10.1136/bmjopen-2023-074095 | ||||||||||||
Status: | Peer Reviewed | ||||||||||||
Publication Status: | Published | ||||||||||||
Access rights to Published version: | Open Access (Creative Commons) | ||||||||||||
Date of first compliant deposit: | 17 November 2023 | ||||||||||||
Date of first compliant Open Access: | 7 December 2023 | ||||||||||||
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