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Experiences of caregiving for people with neurological conditions
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McCartan, Rogan (2023) Experiences of caregiving for people with neurological conditions. DClinPsych thesis, University of Warwick.
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Official URL: http://webcat.warwick.ac.uk/record=b3984187
Abstract
Chapter one is a systematic review exploring the experiences of informal caregivers to UK-based stroke survivors. Fourteen studies were identified for inclusion. Thematic synthesis was used to identify four main themes: ‘The Consequences of Stroke for the Caregiver’, ‘Caregivers’ Needs Resulting from the Stroke’, ‘Caregivers’ Attempts at Coping with the Stroke’, and ‘Care and Support Outcomes’. The stroke impacts Caregivers in a number of ways, which gives rise to various needs. Caregivers do their best to cope, with variable outcomes reported. This review highlighted the need to value caregivers’ unique experiences, and to sensitively provide them with information most pertinent to their individual situation. Caregivers would further benefit from being involved more closely throughout the care, treatment and rehabilitation process. Chapter two is an empirical study exploring the experiences of Health Care Assistants (HCAs) carrying out 1:1 observations of patients with dementia (PswD) in inpatient settings. Semi structured interviews were conducted with eight participants. Interpretive Phenomenological Analysis (IPA) identified three Group Experiential Themes (GETs): ‘A Looming Threat’, ‘They are Human Beings’, and ‘It Takes a Village’. Participants experienced a sense of threat in relation to dementia and some of the associated care tasks. They highlighted the humanity of the PswD, and felt safe when conducting the 1:1 observations in the context of a supportive team environment. Recommendations included exploring PswDs’ personal histories at the earliest opportunity and prioritising HCAs’ sense of safety. Chapter three is a reflective paper illustrating the researcher’s experiences and reflections of completing this thesis in the context of distressing personal circumstances. Acceptance and Commitment Therapy (ACT) was used to support the reflective process.
Item Type: | Thesis (DClinPsych) | ||||
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Subjects: | B Philosophy. Psychology. Religion > BF Psychology R Medicine > RC Internal medicine |
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Library of Congress Subject Headings (LCSH): | Cerebrovascular disease -- Patients -- Care, Caregivers, Health care teams, Dementia -- Patients -- Care | ||||
Official Date: | April 2023 | ||||
Dates: |
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Institution: | University of Warwick | ||||
Theses Department: | Department of Psychology | ||||
Thesis Type: | DClinPsych | ||||
Publication Status: | Unpublished | ||||
Supervisor(s)/Advisor: | Marczak, Magdalena ; Kucharska, Jo | ||||
Format of File: | |||||
Extent: | 215 pages : illustrations | ||||
Language: | eng |
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